Lucy's ONEdraiser: CTNNB1 Gene Therapy
Donation protected
Click here to watch Lucy's story:
My name is Megan and my family and I are determined to give our daughter, Lucy, the best possible quality of life. Lucy was born with a rare genetic disease called CTNNB1 Syndrome. This affects her ability to do almost everything. She may never walk, speak, or do any of the things you and I take for granted. But we have hope for change!
I am in connection with the CTNNB1 Foundation which is spearheading a groundbreaking cure for this disease. It is called Gene Therapy, and it could greatly impact Lucy's future.
For her first birthday, we want to raise $100,000 to give to the CTNNB1 Foundation so that Lucy, and others like her, may have the opportunity to receive this life-changing treatment.
Other children's Gene Therapy success stories:
Please SHARE and donate if you can.
Thank you. From the bottom of our hearts,
Lucy's Tribe
Organizer
Megan Hieb
Organizer
Lakeville, MN