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Lucy's ONEdraiser: CTNNB1 Gene Therapy

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Click here to watch Lucy's story:



My name is Megan and my family and I are determined to give our daughter, Lucy, the best possible quality of life. Lucy was born with a rare genetic disease called CTNNB1 Syndrome. This affects her ability to do almost everything. She may never walk, speak, or do any of the things you and I take for granted. But we have hope for change!

I am in connection with the CTNNB1 Foundation which is spearheading a groundbreaking cure for this disease. It is called Gene Therapy, and it could greatly impact Lucy's future.

For her first birthday, we want to raise $100,000 to give to the CTNNB1 Foundation so that Lucy, and others like her, may have the opportunity to receive this life-changing treatment.

Other children's Gene Therapy success stories:

Please SHARE and donate if you can.

Thank you. From the bottom of our hearts,
Lucy's Tribe
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Donations 

  • Anonymous
    • $300
    • 1 mo
  • Michael Bohnert
    • $100
    • 3 mos
  • Sherrie & Steve Consoer
    • $200
    • 3 mos
  • Kate Wilson
    • $25
    • 3 mos
  • Daniel Knauff
    • $25
    • 3 mos
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Organizer

Megan Hieb
Organizer
Lakeville, MN

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