luke's life-saving antidote
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My name is Luke, and I have a Valium-like substance in my cerebrospinal fluid that's put me in a 24/7 anesthesia-like state of what experts call “hypnotic sedation” for eight years—acting as a positive allosteric modulator on the GABA-A endozepine reactor complex in the same way benzodiazepines act (hence the name). It is 2024, and I've experienced this all day every day since Sept 2016. I spent nearly a decade in a coma and slept 19 hrs a day for years while my powerful, wealthy, abusive ex-family sat and watched, endlessly attributing my coma to laziness or drugs (as the only man in my family who does not do drugs and who, along with my entire medical team, is just trying to reverse the drug my body is creating for itself with an antidote that has no effect on the brain for a physiological disability) or mental health—entrenching so many in its projections that such narratives roar on to this day. At any time, an eight-year coma I’ve suffered every second since I was 19 could instantly end. Believe it or not: that’s been the case for three years dating back to 2021, when Alyson and I solved it and made moves since then. The key is Flumazenil, a competitive antagonist that competes with positive allosteric modulator in my CSF by changing shape of the protein and thus blocking GABA mutation. It reverses the anesthesia my body is creating and I feel instantly better in 2-3 minutes. But I haven’t had it for nearly two weeks. It’s ready for me at the compounding pharmacy in Atlanta that handles all I.H. Flumazenil prescriptions in the US (and doesn't take insurance). Its price: over $600 a month ($444 for lozenges & $160 for cream: the treatment is split between 2 prescriptions: lozenges to dissolve under your tongue and a cream). I have $0. I spent my last few years being perpetually drained of all I had just to escape severe abuse that went on for many years until last week. I’m fine now but as usual, the latest events led to a mutual end of a four-year relationship, canceling of my phone, and more logistical hurdles for someone already stripped of everything. All I need is help on a life-saving antidote that works wonders for me and rent, as well as food. Can't build up wealth while homeless with I.H. untreated. I have no money, I'm uninsured, and I have no family. All I have is superb friends I count on. Love y'all!
-Luke (May 2024)
Organizer
luke atkins barnett
Organizer
Cambridge, MA