Lulu’s long Gap esophageal atresia
Elle (mother of, Luenna aka Lulu) became pregnant during quarantine 2020 during a world wide pandemic with baby no3. It was a rough pregnancy. Initially the family was told it was a twin Momo pregnancy, with signs of two fetal poles and elevated HGC levels. Then they were told that the pregnancy might not last. But despite all of that it did last! With just one beautiful baby girl. Everything seemed healthy with the baby. And they had even done early genetic screening. Things briefly seemed to be getting better end of 2nd trimester but then the pregnancy got much worse in the 3rd trimester when Elle developed polyhydroamnios (too much amniotic fluid) . After an ultrasound confirmed this it was made clear that baby lulu had no stomach bubble. And the cause was due to esophageal atresia (her esophagus is not attached to her stomach. Which is why mom developed polyhydroamnios. (Before 1950 this had a
100% mortality rate) mom had to undergo
SEVEN amniotic reductions. And one amniocentesis was done for more genetic screening. (Everything came back normal and it was determined her disability developed environmentally) Where they stick a large needle through moms abdomen,
through the uterus and into the amniotic sac
to reduce amniotic fluid. Due to maternal
distress and high risk of preterm labor. Each
time mom had this procedure she’d go into
labor and had to be monitored and given medsto prevent pre-term labor. (These all added up to thousands of dollars in bills) the Olsen’s payself employment insurance so essentially
everything is out of pocket until deductible
and out of pocket is met. And then it is 80/20.
Luenna’s bills are in the hundreds of thousands of dollars and has already surpassed half a
million dollars. The Olsen’s are in the process of trying to get assistance for these bills. But
the other medical bills are piling up. Luenna is almost 8weeks old (two months old) end still in the nicu and will be for several more months.She had a g-tube placed at 4 days old so she
can get breastmilk through her tube. She has
the tiniest tube available because she virtuallyhad no stomach. They need to wait for her
esophagus and stomach to grow long enough
to
be repaired. and then will have major life
saving repair surgery. Where they will attach
the two ends. In the meantime the family is back and forth to the hospital. Often time relatives are watching lulu’s siblings (finnegan 5YO &pemberly 2yo) while dad works full-time and mom goes to the hospital to be with baby lulu. Any bit will truly help the family during this time. The relief from MANY medical bills past
present and future would be such a blessing.
during this time of Covid it has been hard on
many. We would appreciate that even if you can not donate yourself that you please share.
God has been so good to us in many ways during this time. So many of the things that could have gone wrong or been worse have been either prevented or did not occur. We’re truly blessed and praying that Luenna’s repair surgery has the best possible outcome. Please add us to your prayer list.
thank you so much!