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Luna Knickman Medical Assistance

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Hi, my name is Emma Luna Knickman.

I've just gone through the most intense, bizarre, magical and miraculous experiences of my life; 3 months in hospital, bouncing between inpatient and ICUS, narrowly scraping by "on a knifes edge" as one of my doctor's put it, and truly almost dying, ... more times than I care to remember or count. Somehow, I made it out alive.


(Luna Back at Home)

When I went into the ER & checked myself into the hospital... I had this intuitive sense; a feeling that I may not escape with my life this time.

I'm so glad that I did.

My little brother saved me. My father saved me. All of the the love around me kept pulling me back. I could feel this in my soul.

A month ago when my brother came out to visit, I was holding on, for him. Just a couple more days; hours, for him to be able to get here.

He's the most important person to me.

And yet somehow, I'm still here.


(Luna & Brother Bo)

I clung onto the love of everybody who came to see me, every message I read, everybody who holds me when I'm scared, of everybody who thinks there's still a chance for me, like we're all willing it into being, together.

I could feel it in my soul, on the days when I'd post a message, I could feel like love and healing energy. I'd just start feeling better, more hopeful, like it was all running and channeling through me.

I've been grappling a lot with the Do Not Resuscitate (DNR) order that comes along with being on hospice.

Me? A DNR? To stop fighting? No, Never.

I had a really impactful meeting with my hospice Doctor, Dr Horowitz. With all of the love and tenderness in his heart, he expressed that if I ended up on life support again, that I'd probably die in the ICU; in the hospital.

And I don't want that. I really don't want that.
I don't want to die.
If, I do, I want to die at home, surrounded by friends and family.

... and so I realized, the only way out of here is up. There just isn't much of a climbing safety net left, so I just need to make sure I don't fall again.

I've been free climbing up this mountain for a while. I believe I can do it!


(Luna in the ICU)

The picture of things; is what we're up against.

I'm now officially out from under the protection of chemo, so it's only a matter of time before my left lung starts filling with tumors, and I eventually lose it's function.

A challenging aspect of sustaining my existence is that we've had to dig much further out of pocket to cover costs for... So many things.

That Meta Neb that Bo set up, they said couldn't be done, he did it, but only through buying the Device and parts on eBay. The cost on my family has been... More than I like to think about, and we're starting to struggle to see how we can make this sustainable, especially so if we want to have access to one final moon-shot of the Enlighten trial in Seattle.

Words from my Dad, he didn't want to reach out to the community until there was imminent need, and right now, more than ever, we need the help. For medical things now, or if I don't make it, putting me to rest.

So while I still struggle to ask for help, and shake while I write this...
Please consider helping me.

Please consider helping me and my family to support me. Please... If you can and are in a position to. Any help would mean the world to me! Thank you.

Much love, and I hope you're well.

~ Luna ❤️



(Luna 's 27th Birthday in July)

[Donated Funds Will Go to Medical Bills, Daily Care Needs and Future Medical Transport to Seattle for Clinical Trials]

[Watch This Space for Updates on Luna, her condition and how you're helping!
Thank You, Only Give If You Can and Keep Luna in Your Heart & Prayers!]

Donations 

  • Anonymous
    • $100
    • 1 yr
  • Sara Phelps
    • $100
    • 1 yr
  • Paul Vine
    • $50
    • 1 yr
  • Heidi Bowen
    • $40
    • 1 yr
  • Sean Quinn
    • $400
    • 1 yr

Organizer

Roy Knickman
Organizer
Hudson, WI

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