Madelaine needs a wheelchair van

Final UPDATE:

I've bought a van! A Toyota Alphard with factory installed ramp that will tolerate 240kilos, and has a ceiling height to accommodate my very tall girl .

I could not have done this alone, I am very grateful, and you can all know what a fantastic thing you have done for Madelaine xx

My name is Amanda, and I'm Maddy's mum. Maddy has a condition called BPAN, and it's an ultra rare, neurodegenerative condition. 600 or so people in the world rare. There's no treatment or cure for it. It's also life limiting, and so Maddy may live to her thirties, if she is lucky.

Madelaine up until recently was still able to get in and out of a car, and walk in the community with great joy. She loves the outdoors, school, the beach, the park, particularly dog parks!

In the last few months it's become clear she's struggling: BPAN is like a cluster of all the horrible conditions you can imagine, such as Parkinson's, dementia, dystonia and dysphagia. I do not know how fast this decline will progress. I want her to be able to cram as many good experiences into her life as possible, and to do that she needs her own wheels.

My gorgeous daughter now spends much more time in her wheelchair. Her needs have increased, and in order to access the outdoors that she loves, she needs to use her wheelchair, and thus needs a wheelchair accessible van.

I'm aiming to buy this as soon as I can. There are two car yards in Melbourne and some in Sydney where I can buy what she needs (a Toyota Voxy) at a manageable price. But I need help, and as hard as it is for me to ask this, please consider making a contribution to help Maddy.