Supporting Gracie Belle on her Aperts Journey

Gracie Belle was born in September 2018 to a disorder called Apert Syndrome. 

Apert syndrome is a rare genetic form of craniosynostosis, the early closing of the soft, fibrous seams between the skull bones. The syndrome affects how her head, face, hands and feet look and work. It is VERY rare. It is estimated to happen in 1 in only 65,000 to 88,000 newborns worldwide!

Gracie has been on an incredible journey so far, defying all odds against her and showing the world what an incredibly strong and fantastic little character she is.
Gracie's family have had to adapt to a different life. Becoming a family of four is a challenge in itself but this family have had to endure a new life of continuous appointments, hospital visits, surgeries and illness, worries and much more to speak of!
Apert syndrome has no cure, but surgery can help correct some of the problems that result. In Gracie's life so far her little body has had to undergo 8 operations, and more to follow in October. It is estimated that before Gracie reaches adulthood she may have had around 40 operations! All of these are a constant fear for her amazing parents, big sister, family and friends.
By helping to raise funds for Gracie we hope to be able to relieve some of the financial difficulties derived from Apert Syndrome. It costs a small fortune to support the numerous visits to various hospitals, overnight accommodation, transport, loss of earnings to support their family, and any home adaptations or equipment she may need in the future.
This amazing family deserve all the help they can get and we wish them all the very best with supporting their beautiful little girl, Gracie Belle. We know this family will be forever grateful to each and every person who has shown them support in any way, emotionally and financially.

Any amount you are happy to donate is so gratefully received, thank you so much for reading!