Malan Syndrome Regional Meet Up Travel Help

Hi! My name is Sky and our daughter has an ultra-rare syndrome called Malan Syndrome (you can learn more here: malansyndrome.org ). Because only about 250 people in the world have Malan Syndrome, we don't get to be together very often.

Recently, the Malan Syndrome Foundation started a new Regional Family Meetup program and our first Regional Family Meet Up for our area is on August 10th! Our family will be hosting the meetup and the Foundation covers those expenses (for dinner, etc) but our regional Malan families need YOUR help!

Could you donate to help with their travel expenses?

When you are ULTRA-RARE (also ultra-awesome) getting to spend time with families and friends just like you - the people who just get it - is indescribable!