Help marceline access life changing specialist care

Hi, my name is Marceline. I have been living with chronic illness since I was very young, however in recent years I have gone through severe deterioration and have been left completely bedbound for the last 2 years, effectively trapped only seeing the four walls of my room unless someone assists me, usually only leaving bed to travel to the hospital for check-ins or stays, or to my local GP, only for a maximum of 3 hours out of bed a fortnight

I spend a lot of time in hospital as a result of this, for pain management infusions, food/fluid and sustenance replacement, and for ICU monitoring when my heart has more intense episodes as it has started going into failure recently.

After over 6 years since it first seriously hospitalised me and had me referred to my first specialist when i was 18, I have finally been reffered to someone who understands and specialises in my condition and believes he can treat it or at least manage it and improve my quality of life.

due to his how niche his speciality is and how limited public health funding is in Australia, it leaves me with a very very large out of pocket gap between how much he charges and how much medicare will fund.

Im hoping to fund that initial consultation ($1500), as well as two followup consultations ($675 X2), and a fund to go towards paying for the pre appointment tests required before i can even see him (at least $400 since the cardiologist doing them is private and there are 5 tests required, most cant be done consecutively) and the travel costs (the clinic is 150km+ away and i need special transport due to my complex condition, usually hiring a car where i can lay the whole trip or patient transport, budgeting that at $200)

everything further will go to all the rest of my medication and appointment costs as i go through hundreds of dollars in prescriptions each month most of which is non PBS covered medications like my heart meds, autonomic meds, pain meds, nausea meds, sedatives and hormones.