Marlowe and Odin Boucher
Donation protected
Megan and Mike Boucher had twins, Marlow and Odin. Both twins were born with NKH ( Non-Ketotic Hyperglycinemia ) causing defects in the enzyme system that breaks down the body's tissue and fluids. Miss Marlow has sadly passed. The family is in severe need of funds to cover medical expenses. Mike is part of our Mercy Hospital family proudly serving his community here in Maine and has served his country in the US Army. Megan has dedicated her career to childcare and have plans to start her own day care facility. We would like your help in their time of need.
Chris Good
Megan and Michale Boucher of Shapleigh Maine had twins on January 30, 2020. Little Marlowe Bee Evelyn and Odin Wilder Boucher came into this world. Little did they know they would come into this world fighting for their lives. Shortly after being born something was terribly wrong, finally the tests came back with gut wrenching news. Both babies were diagnosed with NKH a terminal Non-Ketotic Hyperglycinemia that causes defects in the enzyme system that breaks down the body’s tissue and fluids. This disease is so rare there are only 500 cases worldwide. As you can imagine this was horrific news. After just 11 days in her parent’s arms, little Marlowe Bee passed away with her loving parents by her side. While trying to find the time to grieve their little bumble bee, they also had to find the strength to fight for Odin’s life. Odin seemed to be holding stable and fighting like a little warrior, he graduated from the NICU and was able to come home with his mom and dad on February 24th, 2020. Although his parents were terrified and nervous, they were beyond happy to bring their little man home. Just a week later Megan and Michale’s worst nightmare continued as they said their goodbyes to their baby boy of just 34 days old. Never has the world seen such bravery and courage. Megan has dedicated her life to caring for other family’s children and Mike proudly serves his country in the US Army. This family is fighters and these parents have endured pain that has no words. This disease is so rare, unpredictable and under researched and literally has torn this family to pieces. This family are the kindest most loving people you could imagine meeting, the heartbreak is devastating. Spending the last month pretty much living at the hospital and enduring pain most will never come to know. As we all know the daily life of bills stops for no one, it just piles up until you are back in it add on medical bills the struggle gets even harder. This family needs time, they deserve the time to grieve without the anxiety of piles of medical bills. They need us, we can show the world that human kindness still exists, and we can show the world how powerful love truly is. Anything helps, and if you are unable to donate SHARE their story. Let’s work together to bring this awful disease to light so that maybe another family will be spared. Thank you for your help it is truly appreciated.
Lahanah Jeremy Bowman
Chris Good
Megan and Michale Boucher of Shapleigh Maine had twins on January 30, 2020. Little Marlowe Bee Evelyn and Odin Wilder Boucher came into this world. Little did they know they would come into this world fighting for their lives. Shortly after being born something was terribly wrong, finally the tests came back with gut wrenching news. Both babies were diagnosed with NKH a terminal Non-Ketotic Hyperglycinemia that causes defects in the enzyme system that breaks down the body’s tissue and fluids. This disease is so rare there are only 500 cases worldwide. As you can imagine this was horrific news. After just 11 days in her parent’s arms, little Marlowe Bee passed away with her loving parents by her side. While trying to find the time to grieve their little bumble bee, they also had to find the strength to fight for Odin’s life. Odin seemed to be holding stable and fighting like a little warrior, he graduated from the NICU and was able to come home with his mom and dad on February 24th, 2020. Although his parents were terrified and nervous, they were beyond happy to bring their little man home. Just a week later Megan and Michale’s worst nightmare continued as they said their goodbyes to their baby boy of just 34 days old. Never has the world seen such bravery and courage. Megan has dedicated her life to caring for other family’s children and Mike proudly serves his country in the US Army. This family is fighters and these parents have endured pain that has no words. This disease is so rare, unpredictable and under researched and literally has torn this family to pieces. This family are the kindest most loving people you could imagine meeting, the heartbreak is devastating. Spending the last month pretty much living at the hospital and enduring pain most will never come to know. As we all know the daily life of bills stops for no one, it just piles up until you are back in it add on medical bills the struggle gets even harder. This family needs time, they deserve the time to grieve without the anxiety of piles of medical bills. They need us, we can show the world that human kindness still exists, and we can show the world how powerful love truly is. Anything helps, and if you are unable to donate SHARE their story. Let’s work together to bring this awful disease to light so that maybe another family will be spared. Thank you for your help it is truly appreciated.
Lahanah Jeremy Bowman
Organizer and beneficiary
Chris Good
Organizer
South Portland, ME
Michale Boucher
Beneficiary