Medical and living expenses for KK

Kari’s immune system has been severely compromised, the primary culprit is a condition called dysautonomia which has left her bedridden and unable to do even the most basic things that she enjoys. The cause of her condition is unclear as chronic illnesses of this ilk take years, rather than months, to heal from. While we welcome a spontaneous healing miracle, we’re in it for the long haul. There are a number of protocols and modalities being carefully researched and investigated to help solve this puzzle, but, it isn’t an easy puzzle to solve.

Kari has been experiencing autonomic nervous system dysfunction since around 2018. The primary symptom is severe blood pressure regulation issues. Her blood pressure can be extremely high while doing nothing and drop extremely rapidly with exertion as small as standing from a seated position. Along with this there is a combination of muscle weakness and shakiness, a tendency to faint often, as well as instability and extreme fatigue.

At this point, Kari is able to accomplish the bare minimum of self care. She has been admitted to the local hospital recently, as we (her family) have reached the limit of care that we can currently provide without additional support. Still she exhibits incredible grace and humor and admirable devotion to doing everything possible to remain positive.

The next step is to raise the funds to allow her to do the appropriate targeted and supportive treatments to help bring her back to health so that she can realize the incredible amount of talent, creativity and love she has to give.

Some of these efforts include:

• Renovating the lovely barn she built years ago into a living space so that she will have room to walk and exercise to get her strength up. Her current living quarters are a second-story mother-in-law suite which she is unable to walk down the stairs from. The barn provides enough space for a live-in caretaker or family member to be present at all times.

• Exploring both traditional and experimental treatments for neurodegenerative diseases like hers — many of which are not covered by Medicaid.

• Handicap accessibility retrofits so that she can have some level of autonomy.

• General living expenses as she is unable to work and is 10 years out from receiving social security, additionally, she is likely unable to receive disability because of her self-employment status and history.

You can also help by sharing this campaign with your friends and family via social media, email, or word of mouth.

Thank you all so much for your time and consideration for her.

— Her son & family & friends.