Medical Funds Support for Scarlett and Family

On Christmas Day 2022, my granddaughter, Scarlett began having seizures out of the blue. Shortly after that on New Year’s Eve, she had a stroke which landed her in the hospital in Moose Jaw.

We all have been advocating so hard for Scarlett during this time, and fighting so hard to keep her alive!

Since my daughter took an 18 month maternity leave, this left her in a loophole with receiving EI or any additional government financial support, and therefore she has only been surviving by supporting her family with child tax and child support.

In 2023, after much advocating and specialists appointments, we finally started to get some answers for little Scarlett.

She has been diagnosed with Generalized Epilepsy, Global Developmental Delays and Autism. Although these are difficult diagnosis to hear and overcome, Jas was able to take them in stride and continue to work towards getting support, awareness and extra medical attention for Scarlett.

Unfortunately these past few months, my daughters families world has come crashing down.

Upon doing some further Metabolics testing, the results came back that no one was expecting.

Scarlett has been diagnosed with the NLPR5 gene and an extremely rare metabolic condition called BRAT 1, which devastatingly comes with a terminal diagnosis. Most children do not live past the age of 10 years old and the majority of children succumb to their end with a seizure (which Scarlett has had daily).

This has been a traumatic diagnosis and throws their family's future into the unknown. Jas was planning on returning to work this fall, but she cannot be away from her daughter as every second with her is absolutely precious and she need to be there for her.

We would like to raise enough funds to help save Scarletts life and to help support Scarlett in getting down to the states to see specialists at the Mayo Clinic in the USA.

Jas will be hosting multiple fundraising event nights and silent auctions to help with the costs as well. Watch for updates on those nights and more info.

Please keep Scarlett and family in your thoughts and prayers.

Thank you so much for reading and supporting Jas's family!

This link has all the information on my granddaughter: https://linktr.ee/scarlettstrong.yqr