Emergency Treatment for Cavernous Malformation

I’m starting this Go Fund Me to cover some of the cost so I can afford to be seen by UCLA Cerebral Cavernous Malformation Doctors . I have yet to see a CCM Doctor because it is out of network . I have paid to see several locally . As well as seen the neurologist that was covered by insurance . For the last 3 months I have been suffering seizures, extreme fatigue to the point I can’t get out of bed at times for a week . My speech, motor skills and life have changed dramatically . I own a small business and animal rescue where I give my all to help as many people as I can . I have so many animals and people who rely on me . Now I’m in a situation where my life is changing my health is deteriorating  rapidly and I don’t know what else to do . I have seen local neurosurgeons who have lost there minds . Wanting to operate blindly within days without even looking at my previous MRI. And telling me they can cure me . I knew right away that was not the place for me . That’s not normal And concerned me .  The alliance to cure works with CCM doctors /centers to make sure those who suffer this disease get the proper help. I need to pay to get into this center to override the out of network issues . Once I get in and pay to be seen, get the 3D Tesla scans that are needed to see the Brain fully get the medicines I need to help stop the daily seizures , help with the bleeds and make a plan for brain surgery and or the care that I should be getting . This will also declare me temporary disabled and help me a great deal moving forward with insurance approvals and coverage . I can’t go on much longer like this . Crippling headaches where I can’t move . Sudden balance issues where I randomly fall. Double vision and so many more new symptoms that are occurring regularly  . I’m suffering brain bleeds and I do not know how much longer I can wait before things get worse . I’m asking for any help you can give even a $1 is a step in the right direction. And sharing is so important please share as much as as often as you can . I appreciate all the support I have been given .