Support Megan Johnsons Brain Injury
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Me, My mom Roberta and my twins Luke and Max.
On June 30th 2016 I collapse in Huxley Iowa and my mother luckily had her ESP and came from Omaha NE to find me on my bathroom floor. I was making no sense and I could not walk. I was diagnosed with a brain injury named Wernicke Korsakoff Syndrome (WKS) From lack of Vitamin B1 and drinking alcohol and not eating properly. I forgot how to walk, my memory was shot, my brain and body stopped working!
I am a mother of fantastically wonderful twin 16 year old young men! My twins came into this world extremely early at 29 weeks and weighed 1lb 10oz and 2lb 10 oz. Their father Chris, had passed away in my bed from an Asthma Attack before I even knew I was pregnant. And within the last 16 years I had have to unfortunately bury my grandmothers, my grandfather, my father Ted, and my favorite person ever Adam my younger brother. Life has thrown me a lot of curve balls.
Since my Brain Injury my twins have had to move to another state to live with my wonderfully supportive mother Roberta, our house and car has been sold, I've turned our lives upside down.
I've been in treatment since October 10th 2016 and on April 1st I finally had healed enough to get to move into a apartment back in the town of Huxley Iowa. My twins are finishing their school year at Millard North in Omaha NE, and this summer will be rejoining me back in Huxley IA.
This disability is heartbreakingly hard. I've had to relearn life again, and had to finally grieve correctly for my loved ones. I enjoyed knowing things, but now with my brain injury I feel insanely lost, a lot of self doubt. Not knowing is extremely hard!!!
My neurologist said to me recently that I should be thanking my lucky stars, my angels, because I am somehow making incredible progress with having this brain injury. Most people with Wernicke Korsakoff never live alone again. Only 20% of people make the progress I have! My brain is attempting to heal, slowly, but heal.
Financially when you are on Social Security Disability is extremely hard and tricky. If you make to much you lose it all. I know right now I'm just attempting to give my young men a somewhat new normal life. It's just tricking when every cent you get from SSI goes to rent, and if you work and make too much money you lose your SSI. It's a net! And my brain isn't what or where it used to be. I'm worried about everything and not sure why. I'm trying to prepare for our life back together!
I'm not one who asks for a lot of help, but I'm finally realizing that they way I've handled the rest of my life did not work, so I am trying something new!
Thank you so incredibly much for your help.
Megan Johnson
Organizer
Megan A Johnson
Organizer
Huxley, IA