Meghan's Race Towards A Stem Cell Transplant
Donation protected
Nine weeks after giving birth to our family's precious Austin Scott Davis, Meghan experienced silicone toxicity poisoning from the Mirena IUD. She continued to experience rare and abnormal symptoms for months following her initial episode, and was finally officially diagnosed with an auto immune disorder called Scleroderma in August, which also included strands of Lupus, Fibromyalgia, Rheumatoid Arthritis, and Raynauds.
Scleroderma is a chronic connective tissue disease, where the body produces excess amounts of collagen, beginning with the skin, which becomes hardened or thickened. Each case of Scleroderma is different and can range from mild to life threatening, but Meghan suffers from a progressive form of the disease considered to be Rapid Diffused Scleroderma. Therefore, she's at risk of experiencing this same hardening and puffing symptom throughout her internal organs, such as her heart, lungs, kidneys, and esophagus at a very rapid pace. Doctors believe her case is rare and due to her body's resistance to treatments thus far, they have expressed that she will become terminal within 5 years.
Our family remains positive that Meghan will overcome this disease through a procedure called Hematopoietic Stem Cell Transplant. This is a rebooting of the immune system that uses chemo to wipe out the old immune system, harvesting the body's stem cells to begin a growth of a fresh immune system. While this is not a cure, the goal of this procedure is to stop the progression of the disease, where it doesn't get any worse and won't come back.
Austin turned one year old on January 24th, and as you can imagine, taking care of a baby with this disease has been very trying for Meghan. Just a couple years ago she was as healthy as could be, training for races like the Eagleman (Iron Man), Marine Corp Marathon, Rock and Roll Marathon, Reston Ten Miler and South Riding Tri Sprints. She believes that while she may have been training for her next race, she was subconsciously training for the ultimate survival race she's experiencing today!
This procedure costs $30,000 up front just to begin, and by the end of treatment she will owe roughly $150,000 in medical expenses. Our family is supporting her as much as possible, but we know we can't do it alone. We appreciate any offering you could donate at this time as we all embark on a new journey together to help Meghan Race Towards A Stem Cell Transplant!
We are grateful for all of our friends and family who can assist, and Baby Austin sends lot of love to all who are cheering on and supporting his mommy at this time!
With Love and Light,
The Newell, Davis and Hult Families
***** UPDATE 2/12/2019******
Meghan began the Stem Cell Transplant process the first week of January. She is still currently living in an apartment near Duke University Medical Center as she visits the Bone Marrow Clinic daily for continuous treatments. She will be living in Durham in this apartment until March and is still unable to work at this time. Follow her journey on Facebook at this link: https://www.facebook.com/groups/303833053799506/
We are grateful for all of you who have donated towards her cause and ask that you continue to share this page with your contacts, as her medical expenses continue to pile in. Thank you for all the love and support!
Read more about Scleroderma here
Scleroderma is a chronic connective tissue disease, where the body produces excess amounts of collagen, beginning with the skin, which becomes hardened or thickened. Each case of Scleroderma is different and can range from mild to life threatening, but Meghan suffers from a progressive form of the disease considered to be Rapid Diffused Scleroderma. Therefore, she's at risk of experiencing this same hardening and puffing symptom throughout her internal organs, such as her heart, lungs, kidneys, and esophagus at a very rapid pace. Doctors believe her case is rare and due to her body's resistance to treatments thus far, they have expressed that she will become terminal within 5 years.
Our family remains positive that Meghan will overcome this disease through a procedure called Hematopoietic Stem Cell Transplant. This is a rebooting of the immune system that uses chemo to wipe out the old immune system, harvesting the body's stem cells to begin a growth of a fresh immune system. While this is not a cure, the goal of this procedure is to stop the progression of the disease, where it doesn't get any worse and won't come back.
Austin turned one year old on January 24th, and as you can imagine, taking care of a baby with this disease has been very trying for Meghan. Just a couple years ago she was as healthy as could be, training for races like the Eagleman (Iron Man), Marine Corp Marathon, Rock and Roll Marathon, Reston Ten Miler and South Riding Tri Sprints. She believes that while she may have been training for her next race, she was subconsciously training for the ultimate survival race she's experiencing today!
This procedure costs $30,000 up front just to begin, and by the end of treatment she will owe roughly $150,000 in medical expenses. Our family is supporting her as much as possible, but we know we can't do it alone. We appreciate any offering you could donate at this time as we all embark on a new journey together to help Meghan Race Towards A Stem Cell Transplant!
We are grateful for all of our friends and family who can assist, and Baby Austin sends lot of love to all who are cheering on and supporting his mommy at this time!
With Love and Light,
The Newell, Davis and Hult Families
***** UPDATE 2/12/2019******
Meghan began the Stem Cell Transplant process the first week of January. She is still currently living in an apartment near Duke University Medical Center as she visits the Bone Marrow Clinic daily for continuous treatments. She will be living in Durham in this apartment until March and is still unable to work at this time. Follow her journey on Facebook at this link: https://www.facebook.com/groups/303833053799506/
We are grateful for all of you who have donated towards her cause and ask that you continue to share this page with your contacts, as her medical expenses continue to pile in. Thank you for all the love and support!
Read more about Scleroderma here
Organizer and beneficiary
Jamie Marie Newell
Organizer
Raleigh, NC
Meghan Newell Davis
Beneficiary