Memorial for our sweet girl Isabella

Our baby girl gained her wings on 4/12 @ 6am in our arms.

Never got the chance to post this the other day. Please know anything is appreciated as now we have to go through a whole other process then just paying medical bills and other things that come along with having a daughter in the hospital for 13 months. We will now begin the most heartbreaking process of laying our sweet girl to rest. Can’t even process this

UPDATE: 4/11/2024

Hi, I’m Ashley…. A beautiful little girls mama. My husband is Andrew & we have 3 beautiful babies. Quincy, who’s 2 & our twins Amari & Isabella who are 1. I have created this because yesterday on April 10th, we were given the most heart breaking news as our daughter continues to fight her fight with her very sick lungs. The attending doctor came in to talk to us as we are holding our 2 boys bedside of Isabella and tells us that “she will never go home and will die in the hospital” in that moment, we broke down because not only will we lose our daughter…now we have to think of all the other things that are associated with death. All while balancing 2 other little ones and life on top of it. To the parents who have ever heard that, I’m so sorry…. And to those who never have, cherish your little ones, your kids, your loved ones, everyone around you because as everyone says… tomorrow is NEVER promised. My heart aches every single second of every day knowing my daughter will never get to crawl, learn to walk, or be able to play with her brothers, & her twin. She has been at Boston Children’s Hospital since July 31st, 2023. They have done numerous treatments, used many therapies/support/ medicines, all for her lungs… what we thought was time she needed to grow and lungs to continue to develop. She unfortunately declined and went in the wrong direction where as now when she gets sick/has an infection she takes a longer time to recover and sometimes does not get back to her baseline. She has been paralyzed since Saturday April 6th. She is on maximum therapy support to keep her here with us…. She’s been declining and every time she is touched for a diaper change or her regular care times, she desaturates & really has a hard time coming back up and recovering. Her oxygen saturations have been 80%, whereas they used to be 95% and above but again, slowly declining) Under 70% is life threatening and yesterday she was 72%.

THE BELOW IS FROM A PREVIOUS GO FUND ME FOR ISABELLAS MEDICAL EXPENSES & FULL STORY

UPDATE 2/2/24

Isabella came off of the paralytic for about 3 days and she again could not keep her oxygen saturations up even on 100% ventilator support. Due to this, they had to again paralyze her. She oxygenates better when she is paralyzed because she is not moving, wiggling, blinking, etc. it sounds exactly what it is… paralyzed the ventilator is continuously supporting her. It’s so incredibly hard to see her like this, lifeless. We are just hoping for a miracle. They did a CT scan yesterday on 2/1/2 and the results show that the superficial lung tissue has worsened. She started a medication in October that they thought would help and have decided to stop that due to no improvement. We are very unsure of what this means for Isabella and will continue to pray and be so hopeful for a miracle or some sort of medication/intervention that can help her get through this. We appreciate all the continued support, prayers, positive thoughts. ALL of it, please keep sharing because the more shares, the more prayers, thoughts, etc.

Hi everyone! As I'm sure many of you are aware my loving sister and brother in law had twins almost a year ago. While this news was exciting to all of us, Ashley went for an ultrasound in November in which they found an abnormality on baby B (Isabella) she went to weekly appointments for monitoring and was closely watched by doctors. Isabella was diagnosed with a lymphatic malformation which continued to grow in utero. During this time Isabellas condition was considered “cosmetic” but unfortunately progressed into something more serious which ended up internal and pushing against her airway. Because of this issue, Isabella’s lungs were extremely underdeveloped even more so then being born at 32wks, her lungs were developed to about a 28wk baby. 2 days before Isabella and Amari were born, it was a night of fear and heartbreak as Ashley & Andrew were both faced with the words from a doctor “we will do everything for you & baby a (Amari) and do our very best to save baby b (Isabella) but unfortunately we may have to just hand your baby to you” that was heartbreaking. They stated they had 2 minutes to save her life in which they heard the countdown the day they were born while they both anxiously waited for them to tell them everything was okay with both their babies. It was very traumatic birth to say the least. Although they were able to intubate Isabella at only 2lbs 5oz, she was then on an operating table for a tracheostomy at just 4 days old. Since then she has been on a ventilator with extremely high settings. She requires a lot of oxygen to keep her here with us. She has since been medically sedated and paralyzed at certain times to try to control her oxygenation. Since the beginning of January she had been having alot of desaturations in her numbers at 100% oxygen. No other medications or therapies could help so they had to make the hardest decision to sedate and paralyze her. Because Isabellas lymphatic system is abnormal, she is prone to constantly end up with infection. This time around, they can’t find an infection in which they believe her lymphatic disease in her lungs is worsening. She has had countless surgeries, therapies, and interventions to help with her lymphatic fluids in her lungs but unfortunately they feel her declining from a lung standpoint. Because of her lungs she has been in the hospital her whole life, this was not something Ashley or Andrew expected prior to them being born but are unfortunately still handling it almost 11 months later. She is fighting so hard for her life with the biggest smile on her face. She needs to overcome this and make it home to her beautiful family, pups & cat. She’s got an army behind her. At this point she is maxed out on all ventilator settings, medications, therapies, and interventions, and we are just praying so hard for the best. They are traveling back and forth to Boston multiple times a week to see her and I truthfully don't know how they are as strong as they are, but I admire it. Ashley and Andrew are both hard workers, however - since birth this has caused Ashley to have to stay home with her 2 littles ones (Quincy & Amari) to always be available if something were to happen with Isabella being in an ICU. They are making do but with one income i can’t imagine being in their shoes. Medical bills are extremely expensive so if anyone is willing to help out, every little bit counts. a share, a donation, a loving comment, prayers, and all the positive vibes. Isabella, we all want you home beautiful. We love you.

"Our thoughts of Isabella being hospitalized for a short time, have turned into something long term, we just want our family all together at home. We appreciate all the love and support that we have been given, and cant thank anyone enough"

The Fontes Family

Any donations made through this gofundme will go towards medical expenses, travel expenses, hospital parking, and any remaining funds will be put away for Isabella’s future interventions as she will have many such as facial reconstruction for her jaw and cheek bone as they were extremely affected by the facial fluid mass growing in utero and are unfortunately displaced.

Thank you all from the bottom of our hearts ♥️