Miko "He's one of our own"
Donation protected
Maggie and Łukasz Janik recently delivered some devastating news that their baby boy, Miko, has contracted MECP2 duplication Syndrome. MECP2 duplication syndrome is a rare genetic neurodevelopment disorder. It's caused by the duplication of genetic material on a specific region on the X chromosome. It occurs almost exclusively in males and is characterized by moderate to severe intellectual disability.
Naturally, all of his closest friends and family, are heart broken and want to do as much for the family, as is humanly possible, to show them how much we love and care for them, at this immensely difficult time.
This will be an ongoing effort, to help raise funds that will go a long way to easing the financial burden that they will no doubt encounter, in the coming months and years ahead.
Please give generously or whatever you can spare.
Naturally, all of his closest friends and family, are heart broken and want to do as much for the family, as is humanly possible, to show them how much we love and care for them, at this immensely difficult time.
This will be an ongoing effort, to help raise funds that will go a long way to easing the financial burden that they will no doubt encounter, in the coming months and years ahead.
Please give generously or whatever you can spare.
Organizer
Daniel Walters
Organizer
Brooklyn, NY