Mila's Fight with INAD

Hi everyone.

In February 2025 we received the life shattering news that my beautiful niece Mila Taylor was diagnosed with an extremely rare genetic disease, Infantile Neuroaxonal Dystrophy (INAD) a form of PLA2G6-associated neurodegenerative disease (PLAN).

INAD is a devastating paediatric neurological disease that affects the nervous system, causing progressive deterioration in motor and cognitive function. Sadly, there is currently no cure for this horrible disease and the life expectancy of children with INAD is 5 - 10 years.

Mila was born a healthy, happy little girl. Her proud parents Stephanie & Andrew were so excited for what her future held. Sadly, Mila started to regress in her development and so the long journey for a diagnosis was commenced. After many tests and appointments Mila was diagnosed with this awful disease that we are desperately going to fight.

The Goal:

Our goal is to do everything possible to find a cure for this horrible disease and to support Mila in the best way possible.

Funds will be used for:

    ⁃    Supporting limited research currently being done in both the UK and USA. Particularly, the research trials being done through INADCure Foundation to develop gene therapy treatment for INAD. More information can be found at https://inadcure.org/

    ⁃    Assisting Mila with any potential medical expenses including potential medical treatment overseas.

No family should have to experience receiving such a debilitating diagnosis, no family should have to watch their childs development decline.

Andrew and Steph have shown such strength during this time, but they are now faced with a new life full of specialists, doctors and therapists whilst caring for their eldest daughter too.

Please consider donating and sharing Milas story to help save her and children like her.

We will be forever grateful for your support.