Mirra Wolff & Family
Donation protected
Hi, my name is Molly Wolff, and on January 24th, my 3-year-old daughter, Mirra, was admitted to the PICU for diabetic ketoacidosis. We learned that she was a type 1 diabetic and that her body was in a critical state from blood sugar levels. We stayed in the PICU for a week before being sent home. During this time, she went through everything one would for ketoacidoses (finger pricks every hour, blood drawn every 3 hours, hooked up to monitors, etc) while also having RSV, Coronavirus, and a nasty ear infection. She was also having what was explained as most likely seizures from the stress on her body. Ketoacidosis can be life-threatening, and Mirra's numbers were high enough that she could have been in a coma, but luckily, we avoided that. This is 2 times now in her 3 years of life she has taken a life-changing hit (first being a non-accidental TBI from her first daycare provider).
Mirra has been home now for two weeks and is getting a little better each day. Her glucose numbers are averaging in a closer to normal range, but she still spikes very high and drops critically low. It has definitely been a lot to learn and wrap our brains around. Type 1 diabetes is much more complicated than I had ever thought and is different from Type 2. Her pancreas, for whatever reason, no longer functions. It does not produce the insulin every person needs. This isn’t curable or reversible and has nothing to do with her diet. While it is manageable, it is definitely a lot to manage and can be unpredictable, but we are confident that she will be able to live her life and do anything her heart desires.
Many people have been asking us how they can help or what we need since Mirra’s PICU stay. We are not ones to ask for help, but as you know, times are tough, and it has been very tough financially with us having to alternate weeks to stay home with Mirra until she is cleared to go back to daycare. Her daycare is working on getting the training and clearance they need for her to come back, but until then one of us has to stay home with her (without pay) while still paying her weekly tuition. Without knowing how long until she can return to daycare, along with the hefty unexpected diabetic medication/monitoring bill, impending high hospital bill and our everyday bills…we are at the point of asking/accepting help. This was an unexpected hit and we are doing everything we can to come out of this.
We are absolutely grateful for any help we receive and as far as the goal goes, I just put a number-at this point I do not know how big of a hit we will take. We are lucky to have family who have been able to help, and we are incredibly grateful for all of the love, support, and prayers we have received. Mirra has the best kind of people in her corner. She is tougher and braver than any 3-year-old should have to be.
Organizer
Molly Wolff
Organizer
Des Moines, IA