Our Nellie, Fighting Cancer
Donation protected
(This gofundme page has been setup for Nellie's potential treatment)
I am raising money to help a young couple in their twenties who are going through any parents worse nightmare. When Nellie, their daughter was just 6 months old they received the news that she had cancer. Now her mum Lauren is Nellies full time carer whilst dad Connor travels to and from Great Ormond Street Hospital whenever he is allowed (COVID restrictions). The world still goes on, even though theirs has stopped. They would never in their wildest dreams ask for help themselves as very proud people, so I am doing it for them. Nellies mum will also be in charge of the page just to give updates and everything, so everyone can feel involved with their story.
Here’s the story from mum Lauren explaining everything in more detail..........
Hello everyone.. Well, this is something I never thought i’d have to be doing, but here it goes. Our daughter Nellie was diagnosed with stage 4 high risk neuroblastoma cancer on the 7th July 2020 which obviously came as the biggest shock ever. She was only 6 months old at the time and what started out as a quick doctors visit for a rash and a firm tummy, turned out to be any parents worst nightmare.
We had an ultrasound at Southend Hospital which confirmed she had 3 tumours and the biggest was 13cm, 8cm and 5cm. We got whisked to Great Ormond Street Hospital the following day and it just went on from there. Tests after tests, general anaesthetic after another when we then found out it was neuroblastoma. They told us initially it probably won’t be high risk as under 1’s don’t tend to have it as aggressive, which she unfortunately did. That meant her treatment plan turned more aggressive and it’s now 14-18 months long.
Nellie has currently undergone 8 rounds of chemo which has worked wonders and shrunk all her tumours by just over 50%! It’s also cleared her bone marrow which was also affected by the cancer. She is now currently having High Dose chemotherapy and had her stem cells put back in. That means we have to stay in GOSH for 6-8 weeks as it’s so intense and she will get so so poorly. It’s a long and gruelling time for us all seeing our girl in so much pain and hurt.
After that she will have surgery to remove the remaining tumours, radiation and finally immunotherapy. So much for such a tiny body to handle, but she’s a trooper. The main worry with neuroblastoma is that it’s prone to relapsing. Around 70-80% of cases relapse and it’s not got an amazing outcome. If that was to happen, one of our options would be going to America to be treated in one of the best hospitals that specialise in neuroblastoma. But that comes with a price, roughly £250,000.
We hope that we would never have to use this to go there but you never know where life takes you. So anything will help us. I hate to ask and I feel like a beg but to potentially save our daughters life it’s a must. Any money donated will be used to Nellies treatments and if we don’t need to go it will be used for other families going through the same heartbreak. I don’t have a target goal, as anything we receive is more than we could every of done without you guys. Thank you for reading. X
I am raising money to help a young couple in their twenties who are going through any parents worse nightmare. When Nellie, their daughter was just 6 months old they received the news that she had cancer. Now her mum Lauren is Nellies full time carer whilst dad Connor travels to and from Great Ormond Street Hospital whenever he is allowed (COVID restrictions). The world still goes on, even though theirs has stopped. They would never in their wildest dreams ask for help themselves as very proud people, so I am doing it for them. Nellies mum will also be in charge of the page just to give updates and everything, so everyone can feel involved with their story.
Here’s the story from mum Lauren explaining everything in more detail..........
Hello everyone.. Well, this is something I never thought i’d have to be doing, but here it goes. Our daughter Nellie was diagnosed with stage 4 high risk neuroblastoma cancer on the 7th July 2020 which obviously came as the biggest shock ever. She was only 6 months old at the time and what started out as a quick doctors visit for a rash and a firm tummy, turned out to be any parents worst nightmare.
We had an ultrasound at Southend Hospital which confirmed she had 3 tumours and the biggest was 13cm, 8cm and 5cm. We got whisked to Great Ormond Street Hospital the following day and it just went on from there. Tests after tests, general anaesthetic after another when we then found out it was neuroblastoma. They told us initially it probably won’t be high risk as under 1’s don’t tend to have it as aggressive, which she unfortunately did. That meant her treatment plan turned more aggressive and it’s now 14-18 months long.
Nellie has currently undergone 8 rounds of chemo which has worked wonders and shrunk all her tumours by just over 50%! It’s also cleared her bone marrow which was also affected by the cancer. She is now currently having High Dose chemotherapy and had her stem cells put back in. That means we have to stay in GOSH for 6-8 weeks as it’s so intense and she will get so so poorly. It’s a long and gruelling time for us all seeing our girl in so much pain and hurt.
After that she will have surgery to remove the remaining tumours, radiation and finally immunotherapy. So much for such a tiny body to handle, but she’s a trooper. The main worry with neuroblastoma is that it’s prone to relapsing. Around 70-80% of cases relapse and it’s not got an amazing outcome. If that was to happen, one of our options would be going to America to be treated in one of the best hospitals that specialise in neuroblastoma. But that comes with a price, roughly £250,000.
We hope that we would never have to use this to go there but you never know where life takes you. So anything will help us. I hate to ask and I feel like a beg but to potentially save our daughters life it’s a must. Any money donated will be used to Nellies treatments and if we don’t need to go it will be used for other families going through the same heartbreak. I don’t have a target goal, as anything we receive is more than we could every of done without you guys. Thank you for reading. X
Organizer
Nick Banham
Organizer