Fight for Shantee
Donation protected
We are hoping to meet our first goal of being able to purchase 3 infusions of Soliris for her. This will cost about 93,000 dollars. We are hoping that will be enough to slow down the disease.
Shantee is a beautiful, vibrant third year UBC student. On Oct 13 Shantee became ill and went to the hospital she was told she had the stomach flu and was sent home. She continued to get worse and went to the hospital on Oct 15. She only had a 1/3 of the blood she should have had. She received transfusions and was quickly diagnosed with HUS. HUS destroys the red blood cells and ultimately the kidney. She has no kidney function.
She was transferred to Vancouver general hospital and started plasma exchange. She is allergic to the donor plasma so this has made things difficult. She has incredibly high blood pressure , uncontrolled head pain, high heart rate among a host of other things. She receives dialysis every second day.
This week we learned for sure that she has AHUS. The atypical form of this disease is life long and often deadly. She will likely need a kidney transplant but will be unable to get one with out accessing the drug Soliris. Soliris is the only approved drug to treat AHUS and at this time it is not covered in B.C . This drug has a price tag of 750,000 dollars a year. She will need this for the rest of her life. As we fight for access to this drug Shantee may be in the hospital for months. She is unable to work and when she is home she will need care, a special diet, medications etc. Thank you for any help you can provide. Also please help us to raise awareness by visiting her Facebook page fight for Shantee and use the provided link to email the health minister.
https://www.facebook.com/fightforshantee/posts/240092519855854
Shantee is a beautiful, vibrant third year UBC student. On Oct 13 Shantee became ill and went to the hospital she was told she had the stomach flu and was sent home. She continued to get worse and went to the hospital on Oct 15. She only had a 1/3 of the blood she should have had. She received transfusions and was quickly diagnosed with HUS. HUS destroys the red blood cells and ultimately the kidney. She has no kidney function.
She was transferred to Vancouver general hospital and started plasma exchange. She is allergic to the donor plasma so this has made things difficult. She has incredibly high blood pressure , uncontrolled head pain, high heart rate among a host of other things. She receives dialysis every second day.
This week we learned for sure that she has AHUS. The atypical form of this disease is life long and often deadly. She will likely need a kidney transplant but will be unable to get one with out accessing the drug Soliris. Soliris is the only approved drug to treat AHUS and at this time it is not covered in B.C . This drug has a price tag of 750,000 dollars a year. She will need this for the rest of her life. As we fight for access to this drug Shantee may be in the hospital for months. She is unable to work and when she is home she will need care, a special diet, medications etc. Thank you for any help you can provide. Also please help us to raise awareness by visiting her Facebook page fight for Shantee and use the provided link to email the health minister.
https://www.facebook.com/fightforshantee/posts/240092519855854
Organizer
Jennifer Lee Anaquod
Organizer
Surrey, BC