Covid Vaccine Injury - Help us pay medical bills
Donation protected
The Pfizer vaccine ruined my wife's life. This fundraiser is to pay for medical bills associated with her vaccine injury. We have health insurance, fortunately, so this is to go toward our out of pocket max costs in 2021 and 2022.
Here is my wife's story:
Here is my wife's story:
I have decided to share some more personal and in-depth aspects of my story with you. As many of you know, I received my 2nd Pfizer vaccine on April 21st, 2021. On April 22nd, 2021, I was admitted Code Stroke to Ascension. Since then, my life has been turned upside down. It has been traumatizing and terrifying. I know this is a long post, but it is only a summary of the last 290 days of my life.
Those of you that really know me, know it is truly a struggle for me to reach out and ask for help with anything, especially something financial. So sharing this GoFundMe that Damon created, is hard for me to do, but I share it all with you. I hope that if anything, my story is heard and people know they aren't alone. It took me months to find others like me because in the beginning we were all afraid to speak out about it. Many of us were afraid we'd lose friends and family for speaking out, and some of us did. It is an added bonus if we do receive donations towards the medical bills, because that will help to reduce some of the stress and anxiety off of Damon and myself. We totally understand if you're not able to donate anything, but if you could share my story, we would appreciate it very much.
I will never forget the first time it happened. I felt really off, like my heart was about to come out of my chest, as if I was going to pass out. I looked in the mirror and the entire right side of my face was drooping. I couldn't raise my arm above my head. I tried to wake Damon (who can sleep through a tornado) and when I wasn't able too, I called my parents. I told them I loved them and to make sure that Autumn knew she was the light of my life and how much I loved her. I told them I am sorry I am dying on them. Next thing I knew, my parents were in my house, and then I was in my dad's car at the ER. Then I remember being swarmed by doctors, nurses, and staff. They told me that I was having a stroke, but I was going to be okay. I don't remember much after that until panicking in the CT machine and freaking out about what was going on. I have a lot of memory loss during that time. I know that they told me I ended up not having a true stroke, but a mini stroke and that meant a stroke was imminent. They released me the next day.
It happened again not even twelve hours after being released from Ascension, so my dad rushed me to McLaren. I was again admitted Code Stroke and they did further testing and had me see what I feel was their top inpatient Neurologist. He was awesome and spent time with me and he was the one who came out and told me he felt I was having a reaction to the vaccine. Over the next few weeks, I seen him time and again as I was admitted multiple times to the hospital. He assured me each time that my vitals were stabilizing, that my body was reacting to the vaccine and he would order more testing and give more recommendations and tried a few different meds while I was inpatient. He was the one who diagnosed me with HMD, caused by the vaccine. He referred me to his partner for outpatient, who tried everything he could but was unable to help. He still is trying to help with referrals and anything he possibly can. Those two doctors were the first ones to help me, and for quite a while, the only ones who tried.
As I was dealing with all of these stroke like symptoms, vision problems, speech problems, memory issues, horrible pain, and unexplained neurological deficits, I started having chest pains, high blood pressure, high heart rate, and couldn't breathe. I was taken to ER to rule out a heart attack. I started seeing my parent's cardiologist and his nurse practitioner. Test after test and they said my heart was good. In November, I ended up hospitalized with pericarditis and pleural effusion. That was scary. After six weeks of being on medication and monitored, they said I could discontinue those medications and restart the medications I was on for the HMD. I dealt with worsening symptoms and way more HMD attacks being off of the medications. After all of that, they told me that this is secondary to something neurological. Well now, nine and a half months later, I have some leaky valves and calcification that were not there in the beginning, due to my heart having so much stress on it. But they assure me it is not life threatening or at any stage to have treatment of those issues. I cannot let my heart rate exceed 140, so I am basically stuck in bed unless my heart is having a good day, which is not very common.
It was hard being in the hospital on Christmas Eve, Autumn fearing I wouldn't be home for Santa or for her to open her gifts. Not knowing if I was having a heart attack or if my body was shutting down. I couldn't breathe, I had the worst chest pains I had ever experienced. My blood pressure was extremely high and my heart rate wouldn't come below 130 so Damon took me to the ER. This has caused much anxiety to my daughter as well. She shouldn't have to be worrying if her Mom is going to be okay, if she is going to lose me, if I will live. It is affecting her and I worry about her and try to hide what I can from her.
Things are constantly changing. I keep having new symptoms, some worse than others, some tolerable. There is constant fear and concern of what may come next, what happens if I can't get any kind of function back, or what if this ends up killing me. The news doesn't tell the public about the large amount of us who have been injured by these vaccines. They don't want to scare people into not getting vaccinated. I can understand that, but people have the right to know, the right to informed consent. We cannot sue for medical bills or medical treatment. We are stuck with the bills, the life altering consequences.
Many people do not understand the emotional, let alone the physical toll this has taken on me, as well as my family. I've heard advice to “just push through you'll be fine”, “stay hydrated”, “eat something”, “it will go away”, “I know you're sick, but you're not that sick”, or my favorite one, “you don't look sick.”. I implore those of you that feel that way, or simply who do not understand, to live a day in my life. Take a walk in my shoes, to feel what I feel and live what I live. You would never dream to say those things to me if you had any inclination of what my life is truly like. Those statements show that you clearly do not understand what it is like to live with a chronic illness, especially one that has been extremely life altering. You can't go from being able to function and take care of your child, to not being able to function, or to be able to complete basic life tasks, having to solely rely on others and expect it not to affect someone. If I can't function to be there for myself, how am I supposed to function to be there for my child and my husband?
I am already living with the guilt of not being able to be the mom or wife that I need to be, the daughter that I need to be. I struggle with the guilt that I have to cancel plans with family and friends. I know that sometimes people say things because they don't know any better, or even say things with the best intentions because they want to try to help. Sometimes people don't realize how hurtful some of these comments are, some of them are upsetting as they don't live my life and go through what I am trying to make it through. I have to process things however I need to, even if that means missing family events, gatherings with friends, all while being stuck in my room just so that I can try to not push through and make things harder on me.
When I force myself to do things that are physically hard on me, I end up having even worse days for a few days, which makes things even harder on my family and me. I forced myself to push through a very loud crowd, with lots of bright and flashing lights, just to be present for my daughter's cheer competition. I have only ever missed one and that was because I was in the hospital in Chicago for ten days. She was so sad that I wasn't going to go because I didn't feel good and she understood it would trigger attacks for me. Seeing her face light up because I was going inside instead of sitting in the truck, seeing the excitement on her face when she saw me in the crowd, was worth the suffering I experienced for the next few days. It made her feel so special. She thanked me over and over for coming inside, for cheering her on. It meant the world to her. From that, I ended up collapsing onto Damon while we were outside on our deck. Had he not have been there, I could've hit my head on the brick, or the cement. Now, everyone is worried about me walking around without someone around because I was standing and it came out of nowhere and I'm just thankful he was there to break my fall and ease me to the ground.
Since April 22nd, 2021 (289 days ago), I have had roughly 75-80 days that I did not have one single appointment to see a DR, for a test, for treatment, or was in a hospital. I now have tachycardia, POTS, fibromyalgia, still recovering from pericarditis and pleural effusion, I have kidney stones from the medications, HMD, possible MCAS, and who knows what else this vaccine has done to my body. I have PTSD from all of the worries and fears this has caused me. This is on top of already having asthma, type 2 diabetes, and chronic pain from the car accident in 2012.
I live with constant lung pain, thrush (from medications), constant chest pains, numbness, dizziness, feeling like I'm drunk all of the time, extreme exhaustion, pain all over, speech and memory issues, brain fog, visual disturbances, feeling unwell all of the time, high/low blood pressure, high heart rates. I suffer with lightening pain in random places throughout my body, nerve pain, passing out, almost passing out, being unsteady on my feet. I constantly feeling sick to my stomach, I can't eat many times, and some times if I don't eat because of being sick to my stomach it causes worsened HMD attacks. I gain weight without even eating because I can't be physically active (I recently lost 5lbs though). There's times I hardly eat because I struggle to eat, whether it be from feeling sick or from struggling to swallow. I absolutely cannot function most days, I have no quality of life. I have dealt with my heart rate plummeting and not being able to sleep unless someone is checking my heart rate because it was dropping to dangerous levels. Yet, I still sky rocket. I get high blood pressure randomly then it plummets causing me to almost pass out, and I have passed out. I'm nauseated all of the time and none of the medications help with it, same with the numbness and dizziness. The pressure in my neck feels as if my head is going to pop off, spreading into my jaw and below the ears. I get sensations of someone cracking eggs over my head and it running down the side of my head. The ongoing building pressure and the irritation in my eyes and face is another thing that seems to be changing and worsening. Experiencing jaw and neck pain, head pain, eye pain, facial pain, then the neurological deficits begin and as those stop flaring the pain returns. There are so many more symptoms that I experience but I think you get the idea.
Living with POTS sucks. I struggle to get up out of bed and walk 10 feet to the bathroom without my heart rate skyrocketing to 130-140. I can be laying down and my heart rate will be 88 and I sit up or stand up and it jumps to 140. I have to stay hydrated to help keep my blood vessels functional so that I don't pass out when I stand up. It's hard to try to get physically active when I have to worry about collapsing or falling because my blood pressure plummets and heart rate skyrockets. Constant dizziness and all the fun that comes with it has been rough.
I can't be left alone because of the instability of my health. What if I collapse and no one was around? I recently collapsed outside and thankfully Damon had just come over to where I was. If he wasn't there, I would've hit my head on the brick of the house as I lost all control of my body in a standing position and collapsed. Falling from standing, as Damon says, is very serious. We have the constant fear of when I could collapse again, what if no one is there to know I collapsed, and what if I hit my head. I'm unsteady on my feet, I have balance issues due to the weakness and vertigo.
I can't drive because I can't function or concentrate. What happens if I drive and I have a horrible attack and can't brake or can't function to pull over? I have driven maybe a handful of times in the last six months.
I have struggled with depression, wondering if I am going to make it through this alive. I have had to deal with the constant fear of not knowing if this is going to kill me. I worry that I will leave my daughter without her mother. This is terrifying, a nightmare. Anxiety and fear have taken over many of times, but I push through the best that I can. I pray to God all the time asking him to heal me and for my daughter to not have to grow up without me. There is a major mental health aspect to all of this that I have not spoken about. Living with a chronic illness is exhausting, it mentally wears you down. Living with the unknown is even harder. I'm living with both. It takes its toll not only on me, but my family.
I spend most of my days hidden in my bedroom, where it is dark as night, with a fan going for white noise to try to tune out some of the horrendous ear ringing that comes and goes throughout the day, to distract me from the bright light that I once loved. I sit in quiet most days hidden away from my family. Autumn will come in and cuddle with me and talk to me and sometimes I can even muster watching tv without it triggering some kind of attack. Those are the good days.
This has consumed my life. I understand that this vaccine is too new and no one knows how to fix us and most are denying the vaccine can even cause these injuries. I finally found a support group where there are many others like me who have been injured by the Covid vaccines. Very few have recovered at 80% or more and many have continued to worsen as I have. I know I am not alone in this journey, that there unfortunately are many others like me who are suffering from the vaccine. I have found strength through this support group, guidance and hope.
My husband has become a caregiver to me and household responsibilities have fallen onto him. Autumn does so much around the house and helping with cooking and taking care of me. My parents have given up so much of their time taking me to appointments, sometimes going with me to the appointments, running errands, waiting at the hospitals for me, taking care of Autumn while Damon is at the hospitals with me, taking her to school, picking her up, taking care of me, helping clean the house, helping with the dogs when we are gone for hours at the hospital. Damon and my parents have even missed work just to be there for me, to cry with me, to take care of me when I cannot take care of myself. Without Damon, Autumn, and my parents, I don't know how I would have survived this alone. They have been my rock through all of this, I have been extremely blessed that I have them as my support system. I am beyond thankful for them all. My mom was an angel is disguise when all of this happened. I already had my seeds for the gardens started and there was no way I was going to give up our veggie garden. She was there every step of the way. Prepping, weeding, planting, maintaining, harvesting, preparing for canning and freezing, tearing down the gardens at the end of the season. I truly am blessed to have my Mom.
The last nine and a half months have not only been life altering medically, but have created financial hardships. We experienced over $12,000 in out of pocket medical bills that we are still trying to pay. January 1st started the bills all over again. We are struggling to keep up with the medical bills and that has created even more stress and anxiety for both Damon and I.
I am still in the process of trying to get into the U of M Long Haul Clinic, as well as their neuromuscular/neurophysiology department. I recently switched PCPs and my new one since I met her has been doing everything she can to gather records, fill out the paperwork, speak to whoever at U of M to do whatever she can to get me in. My current Neurologist has recently given a referral to the U of M Neurology Department for Vaccine Injury, but the referral wasn't to their liking so they are rewriting it for me to see a specific doctor. One who was recommended to me by a friend of a friend who suffered from long haul from COVID and had very similar symptoms. I appreciate the doctors who have truly been trying to help, their staff and all of the new advocates I have met. It is a shame the amount of gas-lighting that goes on in the medical field in regards to vaccine injury. I know I am not the only one who has been dismissed because of that diagnosis. I am hoping to have the new referral on Monday so that I can try to get scheduled ASAP as they are booking months out. When I called and spoke to the staff of the doctor I am trying to see, she did say that he has treated vaccine injured patients and that gave me even more hope.
Thank you all for the many prayers, donations, and well wishes for my family and I. Your support means more than you know.
Christina
Over the last 290 days, my wife has had to endure:
36 ER Visits, admitted multiple times
1- 10 day hospital admission Diamond Chicago
46 CT Scans
6 MRIs, have one upcoming
4 MRA's/MRVs
6 EMGs
51 EKGs
1- 14 day heart monitor
1 48 hour EEG
4 ECHOs
3 EMGs
1 heart cath
2 nuclear stress tests
1 physical stress test
1 picc line, lost count on IVS and # of pokes to get a good one
63+ blood draws, not including being poked multiple times for IVs or missed veins
30+ xrays
40+ different medications given/tried
2 nerve blocks
1 round of 31 injections of Botox
15+ and counting different specialists
At least 1-2 doctors visits a week since April 21st. Sometimes I have appointments 3-5 days a week, whether it be testing, imaging, medication changes, ER follow ups, etc.
My feelings regarding my wife:
“Hindsight is 20-20. In hindsight, I wish Christina would have never received the Pfizer vaccine. She got the vaccine out of fear of the virus, but that fear was slowly replaced by other fears.
I fear my wife will die from her vaccine-injury. I fear that if she lives though this, her symptoms may never go away. I fear what this is doing to our family and our daughter. I fear the unknown and the lack of answers thus far.
I am thankful for all that have shown us support.”
Those of you that really know me, know it is truly a struggle for me to reach out and ask for help with anything, especially something financial. So sharing this GoFundMe that Damon created, is hard for me to do, but I share it all with you. I hope that if anything, my story is heard and people know they aren't alone. It took me months to find others like me because in the beginning we were all afraid to speak out about it. Many of us were afraid we'd lose friends and family for speaking out, and some of us did. It is an added bonus if we do receive donations towards the medical bills, because that will help to reduce some of the stress and anxiety off of Damon and myself. We totally understand if you're not able to donate anything, but if you could share my story, we would appreciate it very much.
I will never forget the first time it happened. I felt really off, like my heart was about to come out of my chest, as if I was going to pass out. I looked in the mirror and the entire right side of my face was drooping. I couldn't raise my arm above my head. I tried to wake Damon (who can sleep through a tornado) and when I wasn't able too, I called my parents. I told them I loved them and to make sure that Autumn knew she was the light of my life and how much I loved her. I told them I am sorry I am dying on them. Next thing I knew, my parents were in my house, and then I was in my dad's car at the ER. Then I remember being swarmed by doctors, nurses, and staff. They told me that I was having a stroke, but I was going to be okay. I don't remember much after that until panicking in the CT machine and freaking out about what was going on. I have a lot of memory loss during that time. I know that they told me I ended up not having a true stroke, but a mini stroke and that meant a stroke was imminent. They released me the next day.
It happened again not even twelve hours after being released from Ascension, so my dad rushed me to McLaren. I was again admitted Code Stroke and they did further testing and had me see what I feel was their top inpatient Neurologist. He was awesome and spent time with me and he was the one who came out and told me he felt I was having a reaction to the vaccine. Over the next few weeks, I seen him time and again as I was admitted multiple times to the hospital. He assured me each time that my vitals were stabilizing, that my body was reacting to the vaccine and he would order more testing and give more recommendations and tried a few different meds while I was inpatient. He was the one who diagnosed me with HMD, caused by the vaccine. He referred me to his partner for outpatient, who tried everything he could but was unable to help. He still is trying to help with referrals and anything he possibly can. Those two doctors were the first ones to help me, and for quite a while, the only ones who tried.
As I was dealing with all of these stroke like symptoms, vision problems, speech problems, memory issues, horrible pain, and unexplained neurological deficits, I started having chest pains, high blood pressure, high heart rate, and couldn't breathe. I was taken to ER to rule out a heart attack. I started seeing my parent's cardiologist and his nurse practitioner. Test after test and they said my heart was good. In November, I ended up hospitalized with pericarditis and pleural effusion. That was scary. After six weeks of being on medication and monitored, they said I could discontinue those medications and restart the medications I was on for the HMD. I dealt with worsening symptoms and way more HMD attacks being off of the medications. After all of that, they told me that this is secondary to something neurological. Well now, nine and a half months later, I have some leaky valves and calcification that were not there in the beginning, due to my heart having so much stress on it. But they assure me it is not life threatening or at any stage to have treatment of those issues. I cannot let my heart rate exceed 140, so I am basically stuck in bed unless my heart is having a good day, which is not very common.
It was hard being in the hospital on Christmas Eve, Autumn fearing I wouldn't be home for Santa or for her to open her gifts. Not knowing if I was having a heart attack or if my body was shutting down. I couldn't breathe, I had the worst chest pains I had ever experienced. My blood pressure was extremely high and my heart rate wouldn't come below 130 so Damon took me to the ER. This has caused much anxiety to my daughter as well. She shouldn't have to be worrying if her Mom is going to be okay, if she is going to lose me, if I will live. It is affecting her and I worry about her and try to hide what I can from her.
Things are constantly changing. I keep having new symptoms, some worse than others, some tolerable. There is constant fear and concern of what may come next, what happens if I can't get any kind of function back, or what if this ends up killing me. The news doesn't tell the public about the large amount of us who have been injured by these vaccines. They don't want to scare people into not getting vaccinated. I can understand that, but people have the right to know, the right to informed consent. We cannot sue for medical bills or medical treatment. We are stuck with the bills, the life altering consequences.
Many people do not understand the emotional, let alone the physical toll this has taken on me, as well as my family. I've heard advice to “just push through you'll be fine”, “stay hydrated”, “eat something”, “it will go away”, “I know you're sick, but you're not that sick”, or my favorite one, “you don't look sick.”. I implore those of you that feel that way, or simply who do not understand, to live a day in my life. Take a walk in my shoes, to feel what I feel and live what I live. You would never dream to say those things to me if you had any inclination of what my life is truly like. Those statements show that you clearly do not understand what it is like to live with a chronic illness, especially one that has been extremely life altering. You can't go from being able to function and take care of your child, to not being able to function, or to be able to complete basic life tasks, having to solely rely on others and expect it not to affect someone. If I can't function to be there for myself, how am I supposed to function to be there for my child and my husband?
I am already living with the guilt of not being able to be the mom or wife that I need to be, the daughter that I need to be. I struggle with the guilt that I have to cancel plans with family and friends. I know that sometimes people say things because they don't know any better, or even say things with the best intentions because they want to try to help. Sometimes people don't realize how hurtful some of these comments are, some of them are upsetting as they don't live my life and go through what I am trying to make it through. I have to process things however I need to, even if that means missing family events, gatherings with friends, all while being stuck in my room just so that I can try to not push through and make things harder on me.
When I force myself to do things that are physically hard on me, I end up having even worse days for a few days, which makes things even harder on my family and me. I forced myself to push through a very loud crowd, with lots of bright and flashing lights, just to be present for my daughter's cheer competition. I have only ever missed one and that was because I was in the hospital in Chicago for ten days. She was so sad that I wasn't going to go because I didn't feel good and she understood it would trigger attacks for me. Seeing her face light up because I was going inside instead of sitting in the truck, seeing the excitement on her face when she saw me in the crowd, was worth the suffering I experienced for the next few days. It made her feel so special. She thanked me over and over for coming inside, for cheering her on. It meant the world to her. From that, I ended up collapsing onto Damon while we were outside on our deck. Had he not have been there, I could've hit my head on the brick, or the cement. Now, everyone is worried about me walking around without someone around because I was standing and it came out of nowhere and I'm just thankful he was there to break my fall and ease me to the ground.
Since April 22nd, 2021 (289 days ago), I have had roughly 75-80 days that I did not have one single appointment to see a DR, for a test, for treatment, or was in a hospital. I now have tachycardia, POTS, fibromyalgia, still recovering from pericarditis and pleural effusion, I have kidney stones from the medications, HMD, possible MCAS, and who knows what else this vaccine has done to my body. I have PTSD from all of the worries and fears this has caused me. This is on top of already having asthma, type 2 diabetes, and chronic pain from the car accident in 2012.
I live with constant lung pain, thrush (from medications), constant chest pains, numbness, dizziness, feeling like I'm drunk all of the time, extreme exhaustion, pain all over, speech and memory issues, brain fog, visual disturbances, feeling unwell all of the time, high/low blood pressure, high heart rates. I suffer with lightening pain in random places throughout my body, nerve pain, passing out, almost passing out, being unsteady on my feet. I constantly feeling sick to my stomach, I can't eat many times, and some times if I don't eat because of being sick to my stomach it causes worsened HMD attacks. I gain weight without even eating because I can't be physically active (I recently lost 5lbs though). There's times I hardly eat because I struggle to eat, whether it be from feeling sick or from struggling to swallow. I absolutely cannot function most days, I have no quality of life. I have dealt with my heart rate plummeting and not being able to sleep unless someone is checking my heart rate because it was dropping to dangerous levels. Yet, I still sky rocket. I get high blood pressure randomly then it plummets causing me to almost pass out, and I have passed out. I'm nauseated all of the time and none of the medications help with it, same with the numbness and dizziness. The pressure in my neck feels as if my head is going to pop off, spreading into my jaw and below the ears. I get sensations of someone cracking eggs over my head and it running down the side of my head. The ongoing building pressure and the irritation in my eyes and face is another thing that seems to be changing and worsening. Experiencing jaw and neck pain, head pain, eye pain, facial pain, then the neurological deficits begin and as those stop flaring the pain returns. There are so many more symptoms that I experience but I think you get the idea.
Living with POTS sucks. I struggle to get up out of bed and walk 10 feet to the bathroom without my heart rate skyrocketing to 130-140. I can be laying down and my heart rate will be 88 and I sit up or stand up and it jumps to 140. I have to stay hydrated to help keep my blood vessels functional so that I don't pass out when I stand up. It's hard to try to get physically active when I have to worry about collapsing or falling because my blood pressure plummets and heart rate skyrockets. Constant dizziness and all the fun that comes with it has been rough.
I can't be left alone because of the instability of my health. What if I collapse and no one was around? I recently collapsed outside and thankfully Damon had just come over to where I was. If he wasn't there, I would've hit my head on the brick of the house as I lost all control of my body in a standing position and collapsed. Falling from standing, as Damon says, is very serious. We have the constant fear of when I could collapse again, what if no one is there to know I collapsed, and what if I hit my head. I'm unsteady on my feet, I have balance issues due to the weakness and vertigo.
I can't drive because I can't function or concentrate. What happens if I drive and I have a horrible attack and can't brake or can't function to pull over? I have driven maybe a handful of times in the last six months.
I have struggled with depression, wondering if I am going to make it through this alive. I have had to deal with the constant fear of not knowing if this is going to kill me. I worry that I will leave my daughter without her mother. This is terrifying, a nightmare. Anxiety and fear have taken over many of times, but I push through the best that I can. I pray to God all the time asking him to heal me and for my daughter to not have to grow up without me. There is a major mental health aspect to all of this that I have not spoken about. Living with a chronic illness is exhausting, it mentally wears you down. Living with the unknown is even harder. I'm living with both. It takes its toll not only on me, but my family.
I spend most of my days hidden in my bedroom, where it is dark as night, with a fan going for white noise to try to tune out some of the horrendous ear ringing that comes and goes throughout the day, to distract me from the bright light that I once loved. I sit in quiet most days hidden away from my family. Autumn will come in and cuddle with me and talk to me and sometimes I can even muster watching tv without it triggering some kind of attack. Those are the good days.
This has consumed my life. I understand that this vaccine is too new and no one knows how to fix us and most are denying the vaccine can even cause these injuries. I finally found a support group where there are many others like me who have been injured by the Covid vaccines. Very few have recovered at 80% or more and many have continued to worsen as I have. I know I am not alone in this journey, that there unfortunately are many others like me who are suffering from the vaccine. I have found strength through this support group, guidance and hope.
My husband has become a caregiver to me and household responsibilities have fallen onto him. Autumn does so much around the house and helping with cooking and taking care of me. My parents have given up so much of their time taking me to appointments, sometimes going with me to the appointments, running errands, waiting at the hospitals for me, taking care of Autumn while Damon is at the hospitals with me, taking her to school, picking her up, taking care of me, helping clean the house, helping with the dogs when we are gone for hours at the hospital. Damon and my parents have even missed work just to be there for me, to cry with me, to take care of me when I cannot take care of myself. Without Damon, Autumn, and my parents, I don't know how I would have survived this alone. They have been my rock through all of this, I have been extremely blessed that I have them as my support system. I am beyond thankful for them all. My mom was an angel is disguise when all of this happened. I already had my seeds for the gardens started and there was no way I was going to give up our veggie garden. She was there every step of the way. Prepping, weeding, planting, maintaining, harvesting, preparing for canning and freezing, tearing down the gardens at the end of the season. I truly am blessed to have my Mom.
The last nine and a half months have not only been life altering medically, but have created financial hardships. We experienced over $12,000 in out of pocket medical bills that we are still trying to pay. January 1st started the bills all over again. We are struggling to keep up with the medical bills and that has created even more stress and anxiety for both Damon and I.
I am still in the process of trying to get into the U of M Long Haul Clinic, as well as their neuromuscular/neurophysiology department. I recently switched PCPs and my new one since I met her has been doing everything she can to gather records, fill out the paperwork, speak to whoever at U of M to do whatever she can to get me in. My current Neurologist has recently given a referral to the U of M Neurology Department for Vaccine Injury, but the referral wasn't to their liking so they are rewriting it for me to see a specific doctor. One who was recommended to me by a friend of a friend who suffered from long haul from COVID and had very similar symptoms. I appreciate the doctors who have truly been trying to help, their staff and all of the new advocates I have met. It is a shame the amount of gas-lighting that goes on in the medical field in regards to vaccine injury. I know I am not the only one who has been dismissed because of that diagnosis. I am hoping to have the new referral on Monday so that I can try to get scheduled ASAP as they are booking months out. When I called and spoke to the staff of the doctor I am trying to see, she did say that he has treated vaccine injured patients and that gave me even more hope.
Thank you all for the many prayers, donations, and well wishes for my family and I. Your support means more than you know.
Christina
Over the last 290 days, my wife has had to endure:
36 ER Visits, admitted multiple times
1- 10 day hospital admission Diamond Chicago
46 CT Scans
6 MRIs, have one upcoming
4 MRA's/MRVs
6 EMGs
51 EKGs
1- 14 day heart monitor
1 48 hour EEG
4 ECHOs
3 EMGs
1 heart cath
2 nuclear stress tests
1 physical stress test
1 picc line, lost count on IVS and # of pokes to get a good one
63+ blood draws, not including being poked multiple times for IVs or missed veins
30+ xrays
40+ different medications given/tried
2 nerve blocks
1 round of 31 injections of Botox
15+ and counting different specialists
At least 1-2 doctors visits a week since April 21st. Sometimes I have appointments 3-5 days a week, whether it be testing, imaging, medication changes, ER follow ups, etc.
My feelings regarding my wife:
“Hindsight is 20-20. In hindsight, I wish Christina would have never received the Pfizer vaccine. She got the vaccine out of fear of the virus, but that fear was slowly replaced by other fears.
I fear my wife will die from her vaccine-injury. I fear that if she lives though this, her symptoms may never go away. I fear what this is doing to our family and our daughter. I fear the unknown and the lack of answers thus far.
I am thankful for all that have shown us support.”
Organizer
Damon LaBette
Organizer
Warren, MI