Grayson Fox

September of 2023 Tucker and Sierra welcomed their first precious baby into the world. Their hearts were so full of dreams and hopes for what the future held.

On January 31st, 2024 they received heartbreaking news. Grayson was diagnosed with a mutation of the TSEN54 gene. Specifically he has Pontocerebellar Hypoplasia type 2 which is an extremely rare genetic disease that affects the development of the brain. Gray will have severe disabilities and there is no cure. He is not expected to walk or talk. There is still a lot we do not know about this condition and what the future will look like for Gray.

What we do know is Gray is here now and we will continue to love and care for him. We’ve never known pain this deep and we would appreciate your prayers for Tucker and Sierra as they walk this challenging journey as a young couple.

Many of you have asked how you can help them. We created this page to help support them with the many out-of-pocket expenses they will have.