My amazing husband has been diagnosed MND

Hi my name is Karen, my husband and I have been married for 8 years and at the end of October 24, he was diagnosed with Motor Neurone Disease.

After fighting with the NHS A&E and the doctors for over a year.

12 or 18 months ago, Tony (my husband) was stumbling and dropping things for no reason, this lead to chronic fatigue, weight loss (5 stone loss) to now and falling alot.

We went to the doctors and they just upped the medication he was on for pain.

We knew he wasn’t right but the doctors and A&E couldn’t find any problems. A&E sent us away with vertigo tablets the first time, and the second time, because his speech was slurred, they thought he’d had a stroke so did a CT scan and said, “No stroke, see ya later”

No further investigation..

We were going to the doctors on a weekly basis after this with a list of symptoms still to no avail.

In September 24 we finally got a referral to Neurology, by this time Tony couldn’t walk unaided and could hardly speak, and had lost 5 stone all of which was muscle..

We got to neurology at the end of October and within 20 mins, we had the devastating news of MND.

Then everything happened, we had speech therapy, physio, consultant, and every other service all coming to the house to see him..

Within all this time, I have been working full time at home (luckily).

Nothing has been easy for Tony over the years, and this really hit us both hard.

We don’t have a much money so I have to continue working, when I should be spending time with Tony, as we have been told it’s the aggressive form of MND and may not have much longer with me.

My point in raising money us to be able to send time together and not worry about work and finances, when my husband is dying in front of my eyes.

I have added 2 photos, 1 from June 24 when he walked his daughter down the aisle and the other is how he looks now. Such a massive difference in just a few months..

Any help for me to be able to spend time with my husband would be such a relief. I’m not ready to loss him and I certainly don’t think spending all my days working when I should be making the most of my time with him, caring for him, loving him and enjoying the live we should have had in a short time, is the right thing for any family in this situation.

Id like to thank anyone willing to help me with this, and any money left will go to the MND association.