Myectomy Heart Surgery
Donation protected
In 2004, at the age of 16, I was diagnosed with Hypertrophic Cardiomyopathy (HCM). A genetic disease that causes abnormal cell growth that can be stiff similar to scar tissue, that will grow within the inside of the heart as well as the outside.
That very same year I was placed with an Implanted Cardio Defibrillator (ICD). I was pretty devastated and depressed that I was different, and not in a cool way, especially at 16 years old.
Fast forward 7 years to 2011, I went in to a new cardiologist as I had not had insurance at the time and was fearing the worst with my check up, I was right, another ICD surgery. I recovered well, and faster than the first surgery.
Another 7 years to 2018. I received the news that I knew was coming, I knew I was going to need my 3rd ICD surgery. This time the doctor's wanted to place this ICD with only local anesthesia. Horrible experience. I can remembering hearing them talk of baseball and I remember how the towels rippled as the light anesthesia would hit my brain. Never again will I do that.
In December 2018, I received the news from a new-to-me cardiologist that it appears that I am starting to develop an obstruction within my left ventricle. Not wanting to believe this sudden change in my diagnosis I sought out additional opinions. This cardiologist then sent out all the information needed to the top cardiologists that she knew or at the time. One being a doctor at the University of Utah. He confirmed that I have grown an obstruction in my left ventricle. All my tests come back that I was an anomaly and I shouldn't be doing all well as I was.
I then sought out to get just one more opinion. My last hope you could say. I was placed with a new cardiologist in Murray at the IHC hospital, the mother ship as it has been lovingly be nicknamed. With her more test came, different often difficult tests. All of which stated that I was indeed an anomaly and have started to develop an obstruction.
I was educated about the Septal Myectomy and how it is recommended that I should get this surgery done as soon as I can financially. I have come to the point where my day to day tasks become too difficult, laundry (my favorite) makes me winded but I power through, cooking, cleaning and going to work have all become challenging. The muscle burn that I get from just walking up and down the stairs makes me feel like I just ran a 5k. I shouldn't be feeling this tired but I will push on.
I have come to a point in my recent diagnosis that I have decided to have the Septal Myectomy this September 2019. I am hoping and praying someone can help me with this very small amount needed in order to get me through this process and on the road to healing with a better heart.
Thank you, and God Bless.
All extra donations will be donated to the Hypertrophic Cardiomyopathy Association.
https://www.4hcm.org/
That very same year I was placed with an Implanted Cardio Defibrillator (ICD). I was pretty devastated and depressed that I was different, and not in a cool way, especially at 16 years old.
Fast forward 7 years to 2011, I went in to a new cardiologist as I had not had insurance at the time and was fearing the worst with my check up, I was right, another ICD surgery. I recovered well, and faster than the first surgery.
Another 7 years to 2018. I received the news that I knew was coming, I knew I was going to need my 3rd ICD surgery. This time the doctor's wanted to place this ICD with only local anesthesia. Horrible experience. I can remembering hearing them talk of baseball and I remember how the towels rippled as the light anesthesia would hit my brain. Never again will I do that.
In December 2018, I received the news from a new-to-me cardiologist that it appears that I am starting to develop an obstruction within my left ventricle. Not wanting to believe this sudden change in my diagnosis I sought out additional opinions. This cardiologist then sent out all the information needed to the top cardiologists that she knew or at the time. One being a doctor at the University of Utah. He confirmed that I have grown an obstruction in my left ventricle. All my tests come back that I was an anomaly and I shouldn't be doing all well as I was.
I then sought out to get just one more opinion. My last hope you could say. I was placed with a new cardiologist in Murray at the IHC hospital, the mother ship as it has been lovingly be nicknamed. With her more test came, different often difficult tests. All of which stated that I was indeed an anomaly and have started to develop an obstruction.
I was educated about the Septal Myectomy and how it is recommended that I should get this surgery done as soon as I can financially. I have come to the point where my day to day tasks become too difficult, laundry (my favorite) makes me winded but I power through, cooking, cleaning and going to work have all become challenging. The muscle burn that I get from just walking up and down the stairs makes me feel like I just ran a 5k. I shouldn't be feeling this tired but I will push on.
I have come to a point in my recent diagnosis that I have decided to have the Septal Myectomy this September 2019. I am hoping and praying someone can help me with this very small amount needed in order to get me through this process and on the road to healing with a better heart.
Thank you, and God Bless.
All extra donations will be donated to the Hypertrophic Cardiomyopathy Association.
https://www.4hcm.org/
Organizer
Kaylee Rose
Organizer
Ogden, UT