Myositis Support and Understanding

May is Myositis Awareness Month and our theme for 2016 is #MyositisLIFE. Myositis Support and Understanding believes in Knowledge in Action! We are a nonprofit founded by Myositis patients, for Myositis patients; a patient-centered charitable organization. 

Myositis  is a rare disease without a cure. We want to show the world that Myositis patients have many different faces and lives. We are not defined by Myositis; it is just something we have. You can help MSU achieve its goals of improving the day-to-day lives of Myositis patients and caregivers through education, support, advocacy, and, soon, financial assistance.

The truth is, there isn’t much reliable information, or help, available for Myositis patients and their loved ones. That is why Myositis Support and Understanding is asking for you to donate to make us even stronger than we are today, and to continue to make a huge impact in the Myositis and Rare Disease communities.

We are currently helping over 2,000 patients and caregivers with their day-to-day lives, but it costs money. And like any other nonprofit, we operate on donations made by those like YOU.

So think about if this were you, and it may be, and you had very little support, understanding, or knowledge of a disease you have been diagnosed with that is complicated, and even many doctors are unaware of it. Wouldn’t you want someone like us to be there for you?

So, to help support us we are asking for you to "Go Fund Us." Any amount will help us move forward with the much-needed Myositis patient-centered programs and services. You can and will make a difference! We appreciate your generosity and support.

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Check out our website for more information, UnderstandingMyositis.org

To find other ways to become invovled with Myositis Awareness Month, please check out our detailed Awarness page !