THANK YOU for Helping Noah Achieve His dream

Noah, has Duchenne muscular dystrophy, a life limiting rare disease that cruelly strips away the things you used to be able to do. A simple hug, sitting up independently, brushing your teeth, taking a shower or turning over in your bed.

Noah recently had a palliative care appointment, and unfortunately, the news wasn’t what anyone hoped for. His gut and bowel are failing due to his DMD, and because it’s caused by muscle deterioration, there’s nothing that can be done to improve it. His team is now focused on keeping him comfortable and helping him achieve the things he wants to do.

And what does Noah want? Simply to “do normal things”—stay in college, keep playing wheelchair football, and most of all, finally take his dream trip to Rome.

Three years ago, he saved up his 18th birthday money to go, only to be removed from the Ryanair plane when the airline refused to take his powerchair. Now, after carefully planning the trip again with carers to support him, the funding has been pulled, making it impossible for him to go. We need around £1200 per carer as Noah needs 24 hour care. That's just for them to go there.

It’s heartbreaking to see this happen to someone as positive and determined as Noah.

His Mum Vicki is going to fight the decision of retracting an agreement that his personal healthcare budget or PHB could be used towards his carers to go with him. If the fight is won then any donations will be used to go towards his bucket wish list.

If you can donate, share, or even just spread the word, it would mean everything. Let’s make this happen for him!