Nalon’s family while he under goes surgery

Hi everybody, my name is Nalon Raheem Ryder Billingsley. And I am 3 months old. I was born at Albany Medical Center in Albany NY but due to my crazy big heart and rare condition I’ve been transported to the children’s hospital in Manhattan, NY.

They have been great to me and my parents through this entire process. I’ve had the following done but still have to wait for more surgeries when I am stronger. I have Tetralogy of Fallot with pulmonary atresia and MAPCAS’s , I had a stent put in to get more blood flow to my airways with a aorta pixie (open heart surgery) and will need a further heart surgery to close the hole in my heart when I’m 6 + months and I’m going to have to go rehab to work on my airways and breathing.

Long story short my journey has just begun but I am doing my best to fight through all these changes; and it is very hard!

But I’m not here for me. I’m here asking for help for my family. This has been a long and trying journey for all of us; especially my parents Shadasia and Collin; who on a daily basis travel down from Albany to come see me. They have sat in meetings, and my mom has had to postpone working to make sure that she was with me every step of the way. My dad has had to take care of my three sisters; Mae’Lani 7yrs old, Me’Lah 3years old, and Ny’Lah who’s only 1year older than me while still going to work and supporting my mom. Times have been hard, but they are managing the best way they know how. I’m not asking for much, but I’m asking for our love ones in any way possible to help my parents out with the expenses of traveling, taking care of me and my big sisters that I have yet to meet. During these trying times family sticks together; and we are doing that as I fight for my life on a daily basis.

I wish to come home in the near future, but I know with all of my soon procedures in the process of me getting there it will be difficult on my parents. So because I am unable to fix the problems on my own, can you please help my parents out in anyway?

I thank you in advance for any support you can give them because they love me more than they can express, but I love them more than they will ever know!

Love you guys see you soon!

-Nalon