Neurological investigation

Hi, My name is Catherine Arries and I want to let you know about my daughter Olivia.

Two years ago aged 12 she was diagnosed with epilepsy, a month later diagnosed with non epileptic seizures. Olivia has attempted suicide on 5 separate occasions, swallowed a battery twice and self harms on a regular basis.

She has now been diagnosed, through CYPS, with anxiety, depression, dissassociation disorder and we are fighting for neurology to get back involved to investigate neurological conditions.

For the last 6 weeks the Oliviva we knew has gone, we now have a toddler stage Olivia who has over 50 seizures a day. She has full body paralysis which lasts hours, becomes mute for days, sometimes does not recognise us, family or friends and is unable to attend school.

Olivia also becomes so distressed having hallucinations, feeling her head is going to explode which is heartbreaking as a parent to witness.

We are now looking to get private support due to feeling totally let down by the heath service, who see no urgency in even investing further. Obviously this will not be cheap and would appreciate any financial support anyone can offer.

As a family we are broken and feel we have been let down. For Olivia, she current has no life and we want to offer the best opportunities we can for her.❤️