H-ABC & neutropenia fundraiser for my nephew Noah

Hello all ! 

I am trying to raise some money and awareness around a condition called  H-ABC 

( hypomyelination with atrophy of the basal ganglia and cerebellum )  and neutropenia .

The money will be going to my nephew Noah who was born with these conditions 

H-ABC is a rare genetic condition that can be life-threatening. Because of its rare nature, those battling or caring for a loved one with H-ABC can feel isolated and overlooked.

Noah experiences hypomyelination, where his body is unable to produce myelin at normal levels. This prevents his body from completing normal myelination of the brain, which causes a reduced sensation in his arms and legs. Noah's speech is also impaired and he struggles intellectually among many other things .  

He also experience’s neutropenia , where his white blood cells are extremely low so he is constantly prone to infections 

Noah is an absolute warrior! 

I love and admire his parents and family, and hope to do this small good deed to brighten their lives and give some form of relief 

any donation big or small will make a huge impact 

( *** update - initially I was going to donate my hair, But sadly  my tinted hair is unacceptable ***)