Newborn diagnosed with rare Apert Syndrome

Jayleigh was born on November 26, 2019. With genetics testing done and numerous ultrasounds, there was never any flags raised or reasons for concern. Now she is fighting for her life. She will need tons of surgeries throughout her life. She was born with a cleft palate and her fingers and toes fused together. The middle part of her brain was never developed which is called Septo optic dysplasia, which may cause seizures in her future. When she was born there was air and gas in the lining of her stomach which is causing her to not eat for the first 7 days of her life. She will try to start eating on Tuesday. People with apert have a chance of being blind and/or deaf. Next week they will be doing testing to see how her vision and hearing are doing. Due to her skull fusing together wrong, her eyes bulge and have had too much pressure in them. Lately the pressure has gone down but Jayleigh continues to need several different eye drops per day to try to help her corneas. We have received so many prayers and well wishes we are so grateful for. However, prayers don't pay bills. Her parents are both hard working people but with a future of unknowns all we know is there is going to be an extensive list of procedures required to give this precious little girl the life she deserves. We are asking for help to lighten the financial load off of mom and dad so they can focus on baby Jayleigh. Jayleigh is currently in the NICU at nationwide children’s hospital until further notice. We hope and pray to have her home by Christmas.