Nicholls Family Fundraiser
Matt and Toni are going through every parent’s worst nightmare. Cancer.
Following a recent onset of leg pain their little spitfire Rylie developed worsening symptoms, including wide spread pain, and was admitted to KGH earlier this week (July13th). Following an onslaught of tests it was determined that Rylie was demonstrating markers for Cancer. On the night of July 15th Rylie was transported to BCCH to undergo extensive testing to determine more accurately what is causing her symptoms and pain.
On July 20th Rylie was officially diagnosed with Stage 4 Aggressive Neuroblastoma.
From her Mom Toni: “She has a tumour on her adrenal gland - and there was no way we would have been able to have noticed it.
Short term - she will be getting a specific type of a CT scan called an MIBG to scan where all of the neuroblastoma has travelled throughout her body. And by weekend she will be getting a biopsy done on the tumour, as well as a port installed in her chest for chemos, labs etc.
Chemo will start early next week. The treatment for this is incredibly aggressive. We will most likely be inpatient for another month potentially.
Long term - She will be having many rounds of chemo, radiation, possible surgery, 2 stem cell transplants and immunotherapy. This will all happen over the course of around 18 months.
There will be small stints where we will be able to go back home, but majority of it will be here in Vancouver. There is a small chance one of the treatments could happen in Toronto as it’s part of a clinical trial.
We are still taking it one day at a time and will have to figure out what life with our family will look like. 18 months is a long time.”
If you have had the utter pleasure of meeting Rylie then you know this funny, sweet, feisty lady is going dukes up into this fight.
Toni and Matt are by their baby girl's side and ready to tackle whatever comes next. We want them to do that with absolutely no stress for finances, and to focus on Rylie and their amazing son Cameron.
So if you are in a place to help this wonderful family they'd be forever grateful. You'd be giving them the gift of time to focus on the most precious things to them.