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Olive loves bubbles

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Olive was recently diagnosed with T cell lymphoblastic lymphoma. Prior to her hospital admission she was a typically health child.
She got a cold in mid July that she had a hard time recovering from. One Saturday morning she some swelling over her thyroid was noticed. The following Monday (8/1) she was seen my her pediatrician. By this time the swelling had gotten a bit worse and was determined to be typical lymph node swelling from her cold. We were told to go home and keep an eye on it. By Thursday she was complaining of abdominal pain more and more. Blood test were ordered, they came back completely normal. She continued to get more tired, ate less and complain about not feeling well. As parents, we knew there was something wrong, but there was not any symptom that was concerning enough to go the pediatrician or emergency department.
On Monday (8/8) everything changed. She was resting on the couch, watching a movie looking super worn out. Mom had a feeling Olive needed to take a nap. As soon as Olive was lifted off the couch it was obvious something was very wrong. Olive began choking or dry heaving. Even after she cleared her secretions, Olive could not catch her breath and she turned a very scary color of purple. At that point -
It was time to go to the emergency department.
The staff at the hospital did an excellent job getting her seen right away. Her blood tests once again were normal! Her chest x-ray looked like she may have had pneumonia and there was fluid on both of her lungs. Olive was admitted and antibiotics were ordered. The doctors wanted a CAT scan of her chest because labs and symptoms just weren't adding up, but she could not breath while laying down. It was decided she would be sedated in the morning a chest tube would be inserted & the CT would be done. mom stayed with her through the night and noticed her breathing became more labored. This was brought to the attention of the hospital staff. They decided it was best to watch her in the PICU.
Shortly after being transferred Olive was intubated and a chest tube was unstated into her left lung. The next day a chest tube was placed into the right lung. Her CAT scan revealed a very large tumor in her chest. The the tumor encased several veins, arteries and other important parts that are required to sustain life. The tumor was not only surrounding these important vessels, it was crushing these bits and slowly killing my daughter.
Medications and chemo were started right away. After a few days of medications, repeat CT showed promising response. The tumor was shrinking! She was extubated after a few more days and moved to the children's oncology floor. Over the course of the next week she grew stronger and and has returned to being our feisty, bossy almost 3
year old self!
To say this process was scary doesn't even begin to describe what we went through. We learned that most children with this type of cancer and presentation do not make it to the hospital! So we remain positive knowing we have an amazing team of people doing all they can to help our daughter have the best results possible. This type of cancer is one of the harder ones to kill. Also, we basically have one chance to get it right. We were told she has 80-85% cure rate, but if the cancer comes back only 15-20% survival rate.
Thank you for taking time to read her story. We are not the type of people who reach out for assistance, but have started this for friends, family & those concerned who would like to help.
If you choose to donate - Thank You! All donations, no matter how big or small, let us know we have positive thoughts being sent our way & that means the world to us.
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    Organizer

    Cassandra Bucher-Schmitz
    Organizer
    Grand Rapids, MI

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