Olivia's Chiari Journey
Spende geschützt
Chiari Malformation...
A year ago, the words didn't have the meaning they have today. This is a rare condition in which the brain is herniating through the base of the skull into the spinal cord. And this is Olivia's Chiari Journey. Olivia is a special 9-year-old little girl in Utah. She loves her siblings, her friends and Jesus. Since she was little, she'd suffered in silence until an x-ray to evaluate her severe Scoliosis led to a revelation of a devastating condition. Chiari Malformation.
In September 2019, she underwent brain surgery to remove part of her skull as well as vertebrae, but unfortunately the outcome wasn't as her family hoped. She is now in need of specialized treatment...in Barcelona, Spain. https://institutchiaribcn.com/en/
Olivia's condition is complicated. Her story is one of bravery, faith, and family. This little girl suffers with painful headaches, numbness in her arms and legs, pain in her neck, back and body, and through it all, her special spirit radiates love to everyone around her. She deserves this chance at a future. Without further treatment, her prognosis is too difficult to put into words.
We are in need of your help. I'm going to list just a few of the complications affecting Olivia and why we need this go fund me in order to get her to Spain.
Olivia has Syringomyelia. This is a cyst developing in her spine because of the blockage of spinal fluid because of the Chiari Malformation. She has scoliosis, with a 30-degree curvature and worsening.
And she has Ehler’s Danlos Syndrome...a connective tissue disorder further complicating her treatment.
She has already been accepted for treatment in Spain, but insurance isn't going to cover the surgery or expenses of getting her to these doctors who can give her a chance at a life every little girl deserves. This is Olivia's Chiari Journey. If you are able to help, thank you. (every little bit will help)
And please pray for this sweet angel. Thank you for listening and for your prayers.
(Olivia is my niece. All funds will go directly to the family. This Go Fund Me is authorized by Mike and Amanda Deru, Olivia's brave parents who are trying to make the best decisions for Olivia and her treatments.)
A year ago, the words didn't have the meaning they have today. This is a rare condition in which the brain is herniating through the base of the skull into the spinal cord. And this is Olivia's Chiari Journey. Olivia is a special 9-year-old little girl in Utah. She loves her siblings, her friends and Jesus. Since she was little, she'd suffered in silence until an x-ray to evaluate her severe Scoliosis led to a revelation of a devastating condition. Chiari Malformation.
In September 2019, she underwent brain surgery to remove part of her skull as well as vertebrae, but unfortunately the outcome wasn't as her family hoped. She is now in need of specialized treatment...in Barcelona, Spain. https://institutchiaribcn.com/en/
Olivia's condition is complicated. Her story is one of bravery, faith, and family. This little girl suffers with painful headaches, numbness in her arms and legs, pain in her neck, back and body, and through it all, her special spirit radiates love to everyone around her. She deserves this chance at a future. Without further treatment, her prognosis is too difficult to put into words.
We are in need of your help. I'm going to list just a few of the complications affecting Olivia and why we need this go fund me in order to get her to Spain.
Olivia has Syringomyelia. This is a cyst developing in her spine because of the blockage of spinal fluid because of the Chiari Malformation. She has scoliosis, with a 30-degree curvature and worsening.
And she has Ehler’s Danlos Syndrome...a connective tissue disorder further complicating her treatment.
She has already been accepted for treatment in Spain, but insurance isn't going to cover the surgery or expenses of getting her to these doctors who can give her a chance at a life every little girl deserves. This is Olivia's Chiari Journey. If you are able to help, thank you. (every little bit will help)
And please pray for this sweet angel. Thank you for listening and for your prayers.
(Olivia is my niece. All funds will go directly to the family. This Go Fund Me is authorized by Mike and Amanda Deru, Olivia's brave parents who are trying to make the best decisions for Olivia and her treatments.)
Spendenteam (2)
Lisa MacDonald
Organisator
Ogden, UT
Amanda Deru
Spendenbegünstigte
Amanda Deru
Team member