Our Journey With CRELD1

https://www.creld1.com/our-warriors

Hi my name is Tahli and I am EXTREMELY RARE! I have a mutation in my CRELD1 gene which causes a wide variety of nuero developmental disorders and epilepsy, I have severe hypotonia so I see a lot of therapists who are helping me learn how to meet my milestones! I am 1 in 18 kids who have this disorder! Please visit our website to learn more about this! We are going to defy all odds please help my mom and dad give me the absolute best care and therapy’s there are! We are also going to try to join research study to find a cure for this! In the mean time, thank you for reading about my journey and make sure you follow my page on Facebook “Tahlis Journey”