Help our son to get his life saving surgery

This is our son nickey jrn.who was born 27 weeks premature on the 03-05-23 in the coombe hospital.our little boy is a very complex baby as he was diagnosed with t21, chronic lung disease,a.s.d, hyperthyroidism, cleft lip and palate, pulmonary hypertension, pulmonary stenosis,also he is peg fed and on long term oxygen.

After three months stay in the coombe hospital our boy got transferred to crumlin hospital.

Within his stay in crumlin hospital a lot of procedures were carried out but nothing seem to work to work so after six months stay our boy was discharged to go home for palliative care. We continue to proceed back and forth for his appointments along with hospital stays for when he picks up the slightest thing such as common cold and flu which sets him back account of his lungs something simple as this for nickey jrn can be fatal also our boy tends to go into cardiac arrest at home account of his condition it's frightening to see this.Like every other parent out there we will never give up hope as for this we had researched a lot bout our son's condition and have spoken to many hospitals to see what can be done for our son in conclusion to this we are now also dealing with a children's hospital in Boston where our boy is on a lung transplant list.Its a waiting game now for our boy to receive the call for his transplant.

This all co

es at great cost for his surgery and after care not to mention accommodation while we are over there.This will give our son a chance to live a normal life and not to be tired the whole time and dependant on oxygen 24/7.we would like to thank everyone for taking the time to read our son's story.