Ethan's Quest

When our son Ethan was diagnosed with a rare form of childhood cancer known as a Wilms tumour in July 2021, it was heart breaking enough. To hear that he has recently relapsed, having been cancer free since October 2022, with malignant nodules in his lungs was a devastating and emotionally destroying pill to swallow. 

For everyone that has followed our journey throughout the last 18 months, we are sure you will agree that Ethan has been a true superhero taking everything in his stride. He has continued to be the gorgeous, happy and courageous little boy who we love so very much.

As his parents, words cannot describe how immensely proud we are of him. He is our beacon of strength, hope and positivity throughout this very dark time in all of our lives, but know that his fight for life is not yet over. Although the NHS have said they cannot offer anymore treatment, our fight goes on.

Not much research by medical institutions has gone into finding alternative treatments and clinical trials specifically for wilms tumour in the UK or abroad. The problem we and many other wilms tumour warrior families face is that those few that are available internationally, come with a large price attached.

This does not deter us however. We will not let Ethan down and will find something or someone out there who will help us in the quest to save our son. This should not be happening. No parent should be experiencing the pain we are feeling and no child should be facing a life with cancer. We will save our gorgeous little boy. ❤