Our race against time to find a cure for NKH

Hello everyone, our names are Madiha and Faraz, and here is the story of our precious baby boy...

Our son, Abdullah, was born on May 27th, 2022 and was diagnosed with a terrible disorder at birth called Nonketotic Hyperglycinemia (NKH). NKH causes elevated glycine levels in the body with the inability to break down this enzyme, and because of this, Abdullah suffers from terrible effects such as developmental delays, seizures, infantile spasms, feeding challenges, a weak immune system, inability to move much, lack of head and body control, inability to crawl, sit or stand independently, and the list goes on. He was given one week to live, but by the miracle of God, he continues to fight on. However, kids affected with NKH are unfortunately given a very short time to live as the disease progresses. We are advocating and praying for hope by supporting a couple of organizations and universities who are racing against time to create a cure for this horrible condition. Your help will positively impact our hope and go towards funding a cure so children such as Abdullah and others affected by NKH can have a chance to live a normal life free from this terrible disease. We ask for your help and prayers in this increasingly difficult time for us and all those affected by NKH. Thank you dearly for your consideration and help!