Walker's Pacing Journey

Walker has CCHS which causes him to stop breathing when he goes to sleep and his breathing is sometimes affected while he is awake. To help him with this he has a trach so that he can be hooked up to a ventilator every time he goes to sleep. He is ready to be free of his trach, in order to get rid of it he must have another way to be ventilated at night. The best way for this to happen and the best thing for his quality of life is to have Diaphragmatic Pacers implanted. His trach has always been a part of him and is all he's ever known, but he is ready to be more independent and wants to be more like everybody else. To get this done we will have to travel to UCLA Children's Hospital. It is going be a long process for our family  and will require at least 4 trips to LA and we need all of the support we can get. Walker needs the support. Please help us raise money for him to make his dream come true. To learn more about his disorder click here  www.cchsnetwork.org ‌