Help Pippi Fight OMS

Pippi.  Our beautiful, sweet and sassy 3 yr old niece was recently diagnosed with Opsoclonus-Myoclonus Syndrome (OMS) , a rare neurological disease caused by a neuroblastoma located on the upper portion of her spinal cord.  In the coming weeks, she will undergo surgery to have the tumor removed.  At this point, we don't know what her prognosis will be; but we do know that she will need ongoing therapy, and most likely bi-annual / annual testing (MRIs, CT Scans, etc).
We're not quite sure exactly how much funding will be needed for the long term, but whatever amount is raised will definitely help with meeting her insurance deductible this year and beyond, along with other incidentals that will be difficult to cover.
Pippi is a tough little chick-a-dee.  Any help you can provide will go a long way in helping her fight this battle.