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pfighting pfamily

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http://pfightingpfamily.blogspot.com/2013/11/the-end-of-week-but-beginning-of-future.html



baby brody was diagnosed with an extremely rare syndrome
pfeiffer-type 2 and because of a certain aspect of his condition called a trachea sleeve, he is currently the 13th documented case. he will have an ongoing pfight with surgeries, daily medical care, numerous medical supplies and in home medical equipment, some of which insurance will not cover. please support us in our continued pfight for brody, and our ongoing research of this syndrome.

2015 Update - As of today (4/1/2015), brody has had a trachestomy placed for his main air way, a gtube placed for feedings, 2 brain procedures, 2 skull reconstructions, and will have his mid face reconstruction in September 2015.  He currently has a monthly delivery of medical supplies and has home health care.  Because of your prayers, love and support, our sweet Brody Bear is PFIGHTING the pfight of Pfieffer Syndrome.  








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    Organisateur

    Stephanie Luna
    Organisateur
    Austin, TX

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