Pints For Paxton

Paxton Melnarik was born 2 years ago through an emergency C-section and unfortunately didn’t come out breathing. CPR was performed immediately and he then served the first month of his life in NICU. His journey in his first 2 years has been anything but easy. It was determined that Paxton was born with a genetic condition called “Syndromic Craniosynostosis with a NFIX gene variant. In short many of his “soft spots” in his skull closed prematurely, resulting in a lack of room for his brain to grow. Paxton’s first surgery was at 3.5 months, he recently underwent his 4th surgery and will have his 5th this November. Paxton and his family often make the trek to Chicago, IL for many appointments for this rare condition. So rare in fact, the specialist haven’t seen this exact presentation before. The family is left with a lot of unknowns and maybes from the medical staff. Paxton’s journey is just getting started and he has been such a warrior through this whole process.