Please help Angelise with her medical flight

Hello friends, families and kind hearted people. My name is Josefina , I am the mother of Angelise. Who is soon to be 7 month old. She was born 9/2/2022 with a diagnosis of CDH (congenital diaphragmatic hernia) where her muscle that separates the abdomen from the chest did not develop completely and causes her stomach lung to push up in her chest also causing her heart to shift to the right side. Although I wish I can share the whole journey she’s been through since she’s been in phx children’s hospital since she was born but I have to keep it short as possible… right now she is dealing with a lymphatic leak in her mesenteric artery. It’s been going on for 3 months now and she currently has a drain in her abdomen to remove the fluid that builds up daily. She is intubated because with the fluid pushing up her lungs it’s causing her to have trouble breathing. PCH has done what they can to try and help it stop and it didn’t work. I was told since PCH has nothing else to do for her, I would have to end her life… I didn’t want to hear that, I don’t think anyone would want to. But me being her mother and I know what’s best for her, I am fighting for her. I asked for second opinion and got offered to get her help at children’s hospital of Philadelphia. Where there is a specialist that works on lymphatic leaks and told us they have a plan for her.

But we have an issue going on with our insurance which is giving us a hard time on getting us approved for her medical flight transportation... Unfortunately since she is on oxygen and many medical things the price is too high for myself to get her there.

I am reaching to you all and asking if you guys can please please donate anything to help us get there and back which includes her medical equipment and one passenger to fly with her, which is myself. I just want to get her there safe. Our date to go was set for April 15th. Since our insurance isn’t giving us an update in the past 3 weeks i was told to start this ASAP so we can go and not be pushed back again. She needs this!

—angelise is a happy baby! the nurses love seeing her smile and since she has the mouth tube we can’t hear her laugh or baby talk. But she loves to sit up and smile away. I’m sure she giggles under that breathing tube. She loves listening to loud music or movies, she needs her fan on at all times to keep her comfortable lol and also hates laying flat because she’s like a normal baby, she wants to sit up and move.. She is missing her milestones she could be reaching but with the tube it’s holding her back! I pray for her everyday and ask God to keep her safe and strong while we wait to fix this problem. Let’s spread the word and share this link to get her some help and even if you can’t, please pray for her.

THANK YOU ALL! From the bottom of my heart . I appreciate every one of you