Please help beautiful twin sisters have Zolgensma
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Please help beautiful twin sisters have Zolgensma to cure them of Spinal Muscular Atrophy
On May 29, my older twin Eve was diagnosed with Spinal Muscular Atrophy (SMA) and it was frightening to receive this diagnosis. She was hospitalized because she was eating too little and her legs were too weak and she couldn't sit on her own. Dr. Mered Parnes, arrived on Monday, May 27, and told me that they didn't know for sure the diagnosis of Eve but that if she may had SMA, the FDA had just approved a new drug to cure it. After Rachel the younger sister was tasted, then theresults of blood tests went back to us, She was diagnosed with SMA too.
When my husband and I received the diagnoses of my twins, it was the most heartbreaking news of our lives but at the same time we trusted in God, in his infinite goodness and Mercy. A Texas Medicaid doesn't cover the drug. And every day that children pass with SMA are vulnerable and fragile, their muscles are weak, and they are always prone to have a respiratory disease and that it may becomes complicated, because they do not have enough strength in their muscles of their respiratory system. So I ask you with all my heart to help my twins to have this cure.
I trust in God, I know that He is real, He loves every one of us, everyone has a purpose in life, I have faith in him and I know that faith without works is dead, so I have neglected to act asking everyone for his help.
It's a chance for my babies twins to stay healthy and have a normal life.
On May 29, my older twin Eve was diagnosed with Spinal Muscular Atrophy (SMA) and it was frightening to receive this diagnosis. She was hospitalized because she was eating too little and her legs were too weak and she couldn't sit on her own. Dr. Mered Parnes, arrived on Monday, May 27, and told me that they didn't know for sure the diagnosis of Eve but that if she may had SMA, the FDA had just approved a new drug to cure it. After Rachel the younger sister was tasted, then theresults of blood tests went back to us, She was diagnosed with SMA too.
When my husband and I received the diagnoses of my twins, it was the most heartbreaking news of our lives but at the same time we trusted in God, in his infinite goodness and Mercy. A Texas Medicaid doesn't cover the drug. And every day that children pass with SMA are vulnerable and fragile, their muscles are weak, and they are always prone to have a respiratory disease and that it may becomes complicated, because they do not have enough strength in their muscles of their respiratory system. So I ask you with all my heart to help my twins to have this cure.
I trust in God, I know that He is real, He loves every one of us, everyone has a purpose in life, I have faith in him and I know that faith without works is dead, so I have neglected to act asking everyone for his help.
It's a chance for my babies twins to stay healthy and have a normal life.
Organizer and beneficiary
Nellie Villalobos Ortega
Organizer
Westfield, TX
Jose Esparza Santoyo
Beneficiary