Please Help Blake's body get stimulated to move
Donation protected
Hi my name is Charlene I'm the mum of this wonderful little boy Blake.
Blake has spina bifida,
myelomeningocele from L2 to L5, which is the most severe type which means he has no feeling from the hips down or no bowl or bladder control. He also has Chari malformation and hydrocephalus fluid in his brain .
Sleep apnea and tethered cord.
I have found a physio therapist in Florida who does spinal stimulation.
This could make a massive difference to Blake's life. Get him moving his legs , gain strength, and sensation below his hips , help with bowl and bladder control and potentially change this little man's life. This will be a life long treatment.
The funds raised will go toward the tens machine and replace leads also the pads we need to use the machine and online learning which we will need a zoom call every 2 weeks . how and where to place the pads to get his body moving . Also a vibrating plate to help get his muscles working . maybe also a frog and a go bro so he can get moving on his tummy and give him some independence to get around the house.
Blake has had 8 operations three shunt revisions an evd device.
He also has sleep apnea where he stops breathing while he sleeps. He might need another operation on his airways to unblock any blockages.
Blake is 9 months old and been through so much already..
He is going to have a massive challenge ahead of him ..
He is so brave and always has a smile on his face he makes me very proud .
With hubby waiting on a double hip operation he can't go back to work untill this is done unfortunately which has been really hard on us all .
I would be so very greatful for any help that can help get my boys legs moving and hopefully gain some sensation.
Hopefully one day he will prove the doctors wrong and he will be able to stand, through hard work and determination.
Thank you for taking the time to read this
Fundraising team (2)
Charlene Stewart
Organizer
Scotland
Robin Stewart
Team member