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Please help Ela

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Ela is six years old and was born with the very rare Charge Syndrome which is a disorder that affects many areas of the body. CHARGE is an abbreviation for several of the features common in the disorder: coloboma, heart defects, atresia choanae (also known as choanal atresia), growth retardation, genital abnormalities, and ear abnormalities.

Ela's family's insurance company will pay for her urgently needed heart operation which will include the new technique 'cone reconstruction'. Unfortunately, the insurance company will not pay for accommodation for Ela's mother while her only child is in hospital during recovery. I have been reliably informed that B+B accommodation close to Great Ormond Street Hospital will cost around £150 per night and Ela's family have been advised that the total time they should set aside should be 4 - 5 weeks.

Great Ormond Street Hospital has said the operation is intended to be performed in November, so it is important that funds are raised in the next few short weeks.

Ela has been plagued with varying illnesses for most of her young life and her family are distraught that their lack of money is putting her life at risk.

Please help folks, this little angel needs your support.

All monies raised surplus to requirements will be donated to the Great Ormond Street Hospital charity.

Organizer

Sean Didim
Organizer
England

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