DONATE To St Peters & St James Hospice For Hannah

The end of an era.

I appreciate that this news is going to hit hard for many of you as you have been inspired by Hannah’s journey over the last 13 years.

Hannah passed away peacefully today at the most incredible St Peter and St James Hospice in Sussex.

She has a legacy to fulfil that I will be sharing with everybody very soon.

The last 18 months have been a massive rollercoaster and Hannah is quite simply the greatest human being I’ve ever met. She fought all the way.

Seeing her fight and determination to live is something that I will always be in awe of.

We are so grateful for all the love and support. We are raising money for the Saint Peters and St James Hospice whew Hannah spent her last few days. Please donate on our Gofundme if you can.

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This is a very special appeal to raise money for life-saving treatment for Hannah who has a brain tumour.

We need to raise money to give her the opportunity to continue treatment which will save her life. The NHS cannot offer her any options but there are some pioneering therapies available in Germany that Hannah is currently having.

Our Story

Hannah was first diagnosed with a brain tumour in 2011 when, out of the blue, she had a major seizure in the middle of the night. She lost consciousness and was rushed to hospital.

Hannah does not remember much about the two months that followed as she had constant headaches and a number of seizures. She was diagnosed with a very serious brain tumour called Anaplastic Astrocytoma. Hannah decided to have surgery and on 1st of April 2011 and underwent a six and a half hour operation. She was awake for nearly three hours of this operation.

We had to wait for the results of the biopsy for a few weeks and we remained positive. However, the news was not good and our world was rocked once more as the results showed a Grade III tumour.

Hannah’s treatment options were very limited and her life expectancy for this type of tumour is normally around 18 months and this is why I started a mission to find alternatives. The most successful results came from a pioneering treatment in the USA. 

 This treatment was not available via the NHS and we raise around £200,000 to fund Hannah’s treatment. It worked and Hannah made a full recovery. I even made a film called Hannah's Anecdote that showed the journey we went on together. https://www.youtube.com/watch?v=0U5XeSaO_QY&feature=youtu.be.

However, things took a turn for the worse in November 2021 when Hannah had another major seizure and since then her condition has gradually declined with more seizures and the right side of her body not functioning properly. Results of a recent MRI show that there is a reoccurrence of the tumour. It is inoperable and repeating the previous treatment is not an option for us now. 

Things have moved on in terms of treatment but none are available on the NHS. We are currently exploring two options – one in the US and one in Germany both of which cost in the region of £250,000 to access.

Should it prove that Hannah doesn’t need all the money we raise we will donate the funds to a charity so that someone else can benefit from this life-saving treatment. 

There is a challenging road ahead and we need all the help and support we can get.