Help Save Valeria's Life (SMA 1)

Dear All,

 

First and foremost, thank you for taking the time to read Valeria's story. Valeria is a family member from my home country Moldova, for which I'm trying to help raise funds for an immense amount of money needed for treatment.

 

At only 4 months old, this beautiful soul was diagnosed with a rare genetic disease called Spinal Muscular Atrophy Type 1 ( SMA 1), which attacks motor neurons in the spinal cord. As the neurons die, the muscles begin to atrophy.

 

Without treatment to slow the progression of the disease, the life expectancy is about 2 years old. Many countries around the globe offer reimbursement for such treatment for their citizens; unfortunately, Moldova does not offer such benefits to their citizens, leaving the parents helpless and desperate to find solutions to save their children.

 

A single dose of Spinraza (the drug that helps slow disease progression) costs approx. $84,000. The initial treatment requires 4 doses in 2 months, then 1 dose every 4 months.

 

Thankfully, thru a lot of effort and a vast community of parents with children suffering from SMA and good-hearted people like yourself, all have come together and have been able to raise funds necessary for the first 4 doses, which was an enormous accomplishment.

 

But the fight is not over; in April 2022, Valeria is due for her 5th dose, so here I am, pleading with everyone that reads this, please don't be indifferent; no matter how small the amount is, it is much appreciated and will go to a good cause... a cause to save a sweet child's life. Any shares, reposts or likes are much appreciated as well. Please help spread the word.

 

Sincerely,

 

Ana