Please help Willow get a safety bed

Hi everyone. I am running this go fund me to raise money to buy two very important pieces of special needs safety equipment for my daughter Willow. People may remember Willow from the news in 2022, when she was entered in a contest to win a special needs adaptive bike. The community got together to vote for her and she won her bike which she enjoys riding so much! But now we are in need of help again...

Willow was born with a very rare genetic mutation called DDX3X syndrome, as well as Autism. She has global developmental delay, intellectual disabilities, and multiple health issues. Although she is 8 years old, developmentally she is the equivalent of 1.5-2 years old. She requires many pieces of specialized equipment in order to live her daily life safely. Unfortunately, medical equipment is extremely expensive and funding options are limited. Due to her severe level of special needs, I have not been able to work since she was born because she requires 24/7 round the clock care. As her mama, it is heartbreaking for me that I cannot afford some of the items she needs.

The two items she is in desperate need of right now, are a special needs safety bed and a harness for our car. She has outgrown all traditional child car seats, but she needs the support to help her sit upright. We have tried several medical car seat options, and have found that the EZ-On Vest is the best choice for her. We have been trying to get funding to purchase one for about a year, but have been denied. She is now at the point that she doesn't fit in her regular car seat at all, so I need to get her the EZ-On Vest myself because we are out of time to keep reapplying for different funding. We spend alot of time in the car driving to and from all her appointments and also to school. She needs to be safe and comfortable in the car, and she needs the EZ-On Vest for that to happen.

The other very major item she needs ASAP is a special needs safety bed. For the past 6 years she has been sleeping in a custom made wood bed frame with safety rails on all sides. However, Willow has grown alot since it was made and she is a very tall child. Several weeks ago she fell out of her bed resulting in a minor concussion and a broken bone in her foot. I had to remove her bedframe and place her mattress directly on the floor with no safety enclosure. Even though her bedroom is safety proofed, it is still very dangerous for her to be able to get out of bed multiple times a night. I have had to start sleeping in her room just to supervise her overnight. Which means neither of us are getting proper sleep these days. I have researched many types of special needs safety beds, and found one that is a good fit for Willow. It is called the the Safety Sleeper. It has all the safety features that she requires, and surprisingly it is one of the most affordable safety beds on the market. It costs about half of what some of the other beds cost, but after shipping and the currency conversion rate, it still works out to over $9000!

It is very upsetting that even though Willow has such complex medical and developmental issues, that these two major items are not covered by any kind of funding. They are also not covered by our medical insurance, which leaves me responsible to find a way to pay for them.

This go fund me fundraiser is to help cover the cost of a Safety Sleeper bed ($9400), and the EZ-On vest and car mount for the vest (approx $500).

For anyone local to us on lower Vancouver island, we are also doing an ongoing bottle drive. You can drop your empties off at any of the 4 Bottle Depot locations (Glanford, Quadra, Queens, and Idlemore) and donate your refund into our account "Willow Clark".

Any help we get whether through this go fund me, through the bottle drive, or even by sharing this link to spread the word, is greatly appreciated. Thank you so much for taking the time to read this.