Pomôžme Adamkovi s liečbou kmeňovými bunkami

Túto zbierku som sa rozhodla založiť pre môjho milovaného synčeka Adamka.

Keď mal Adamko 1 rok, bol zdravý, veselý chlapček. Chodil, smial sa, tešil sa z každého dňa a ja som sa radovala s ním. Potom však prišiel deň, ktorý zmenil život Adamka aj nás, jeho rodiny. V rámci pravidelnej prehliadky dostal očkovanie proti meningokokom, no ani my, ani lekári sme netušili, že v jeho tele už driemala rotavírusová infekcia. Na druhý deň po očkovaní mu začali tráviace problémy. Ako rodina sme verili, že ide o bežnú reakciu, aké mal pri očkovaní už predtým, no večer teplota vystúpila nad 41 °C, a tak sme ho vzali do nemocnice.

V nemocnici ho prijali s podozrením na dehydratáciu a uisťovali nás, že po zavodnení bude v poriadku. Bohužiaľ, jeho stav sa rýchlo zhoršil, dostal sepsu, zlyhávali mu pečeň aj obličky a čoskoro sa ukázalo, že utrpel poškodenie mozgu. Lekári nám povedali, že je to veľmi vážne a že sa môže stať, že to nezvládne.

Ale Adamko je bojovník. Po troch týždňoch na klinike prežil a presunuli ho na JIS. Jeho pľúca, obličky a pečeň sa začali uzdravovať, no mozog zostal poškodený. Diagnostikovali mu akútnu nekrotizujúcu encefalopatiu, zriedkavé ochorenie, pri ktorom časti mozgu odumierajú kvôli prehnanej imunitnej reakcii. To mu spôsobuje problémy s ovládaním tela a poruchu zraku.

Po mesiaci a pol v nemocnici sa konečne dostal domov. Napriek vážnemu stavu sa nevzdáva, a tak sme začali intenzívne cvičiť, aby sme jeho stav čo najviac zlepšili. Cvičíme Vojtovu metódu, ergoterapiu, logopédiu, hipoterapiu,muzikoterapiu a mnoho ďalších cvičení. Keďže dlho nedokázal normálne jesť, zaviedli mu PEG priamo do žalúdka, aby dostával dostatok výživy.

Dnes sa Adamko nedokáže sám otočiť, postaviť sa, držať hlavičku, ani rozprávať. Má problémy so zrakom a fixovaním očí, väčšinu stravy prijíma cez PEG a musí užívať veľa liekov. Ale Adamko sa nevzdáva a s našou pomocou sa snaží napredovať.

Našťastie sa ukázalo, že je vhodným kandidátom na liečbu kmeňovými bunkami. Veríme, že táto liečba spolu s intenzívnou rehabilitáciou mu môže priniesť pokroky, vďaka ktorým by mohol zamávať, hrať sa s hračkami alebo opäť povedať „mama“ a „tata“.

Financie budú použité na pokrytie nákladov spojených s liečbou kmeňovými bunkami pre malého Adamka na klinike Kobinia Med vo Viedni. Tento zákrok predstavuje reálnu nádej na zlepšenie jeho zdravotného stavu a kvality života.

Cieľová suma, ktorú potrebujeme na tento účel vyzbierať, je 20 000 eur.

Táto suma pokrýva nielen náklady na samotný zákrok, ale aj ďalšie s ním súvisiace výdavky, ako sú:

• Cestovné náklady na presun do Viedne a späť

• Ubytovanie a strava počas pobytu

• Postoperačné rehabilitácie, ktoré zahŕňajú intenzívne cvičenia

• Náklady na doplnkovú liečbu a lieky

V prípade, že by sa vyzbieralo viac financií, než je stanovená cieľová suma, tak by sme prostriedky využili na kúpu väčšieho automobilu. Ten by umožnil bezpečný a pohodlný prevoz Adamka, jeho rehabilitačných pomôcok a potrebného vybavenia na terapiu.

Vaša pomoc znamená pre našu rodinu viac, než sa dá vyjadriť slovami. Ďakujeme vám za každý príspevok a za to, že dávate Adamkovi šancu na lepší život.

Ďakujeme všetkým, ktorí si prečítali Adamkov príbeh a podporili nás v našej ceste za jeho uzdravením.

English version:

I decided to create this fundraiser for my beloved son, Adamko.

When Adamko was one year old, he was a healthy, cheerful little boy. He walked, laughed, and enjoyed every day, and I shared in his joy. However, there came a day that changed Adamko’s life—and ours as his family—forever. During a routine check-up, he received a vaccine against meningococcal disease. None of us, not even the doctors, knew that a rotavirus infection was already dormant in his body. The day after the vaccination, he began experiencing digestive problems. As a family, we thought it was a typical reaction, just like the ones he had experienced with previous vaccinations. But by evening, his fever spiked to over 41°C (106°F), and we rushed him to the hospital.

At the hospital, he was admitted with suspected dehydration, and we were assured that rehydration would help. Unfortunately, his condition quickly deteriorated. He developed sepsis, his liver and kidneys began to fail, and it soon became clear that he had suffered brain damage. Doctors told us it was very serious and warned us that he might not make it.

But Adamko is a fighter. After three weeks in critical condition, he survived and was transferred out of intensive care. His lungs, kidneys, and liver began to recover, but his brain remained damaged. He was diagnosed with acute necrotizing encephalopathy, a rare condition where parts of the brain die due to an excessive immune response. This has left him with severe motor and vision impairments.

After a month and a half in the hospital, he was finally able to come home. Despite his critical condition, he hasn’t given up. We began intensive therapy to improve his condition as much as possible. We practice Vojta therapy, occupational therapy, speech therapy, hippotherapy, music therapy, and many other exercises. Because he struggled with eating for a long time, a PEG tube was inserted directly into his stomach to ensure he receives enough nutrition.

Today, Adamko cannot turn himself over, stand up, hold his head, or speak. He has vision problems and struggles to fixate his gaze. Most of his nutrition is delivered through the PEG tube, and he needs a lot of medications. But Adamko keeps fighting and, with our help, tries his best to make progress.

Fortunately, he has been identified as a suitable candidate for stem cell therapy. We believe that this treatment, combined with intensive rehabilitation, could lead to significant improvements. It may give him the ability to wave, play with toys, or say “mama” and “tata” again.

The funds raised will be used to cover the costs of stem cell therapy for little Adamko at a clinic Kobinia Med in Vienna. This treatment represents a real chance to improve his health and quality of life.

Our goal is to raise 20,000 euros.

This sum will cover not only the procedure itself but also additional related expenses, including:

• Travel costs to Vienna and back

• Accommodation and meals during the stay

• Post-operative rehabilitation, including intensive exercises

• Costs for supplemental treatments and medications

If more funds are raised than the target amount, we plan to use the surplus to purchase a larger vehicle. This would enable the safe and comfortable transport of Adamko, along with his rehabilitation equipment and necessary therapy supplies.

Your support means more to our family than words can express. Thank you for every contribution and for giving Adamko a chance at a better life.

We are deeply grateful to everyone who has read Adamko’s story and supported us on this journey toward his recovery.

Thank you!