Help Save my Wife's Life.

We are forever grateful to God and to our Lord and Savior Jesus Christ. We have been trying to keep our heads down and keep cherishing every day. We are so grateful for every single day God Gives our little family. We know times are so hard for everyone right now. We are Praying for everyone. There is so much to write and so much to say. I am trying this time to write this myself. If you have followed and Prayed for my little family... thank you. I'm sorry that I haven't updated. I just wanted to be with my little one and focus on Healing and Praying. And Knowing that Healing Will Come from God.

This all began back in 2015. The years have gone by and I am so grateful to Our Heavenly Father. By the Grace of God, I still get to hold my little one's hand and be her mama. I am on home care now and Praying for Healing in this Safe Space God Built. Praising Him.

I know people were probably hoping and Praying not hearing from us was a good thing. And we are so grateful and thankful to God for this Safe Space where we have been able to keep me home and try to work on getting nutrients back into my body and healing. Truly, I am so thankful for the time with my little family. Praising You Father for everyone You Put in our path to Help. Truly, thank You.

I don't want to ask for any more help. This has just been really hard. Honestly, I find myself Praying and thinking on what to do. My body has declined in a way that I Pray no one ever has to experience. But, I asked God a long time ago, and it is still my Prayer, that I just get to be here with my little one and my husband. I thank Him and Praise Him that He Allows me to be here and to say I love you and to laugh and listen to her laughing and to sing with her to hear her sing to me. To cry(even though I try not to)...but to live and breathe her in and just be her mama. To witness her grow and to love her with everything in me. I am grateful to God I get to be here. I know it is by His Grace Alone. All Glory to You Heavenly Father.

I am still battling mast cell disease. I now have Chiari Malformation 0 and Craniocervical Instability that they can not operate on and all the other things, probably about 20 to 30 diagnosis'. Immunocompromised, anemia, osteoporosis, hypothyroid, hematomas, babesia, connective tissue disorders, POTS, neuropathy, migraines, stage 4 Endometriosis and an endometrioma that we just have to watch because I can not undergo the surgery, malnutrition, loss of sensation and coordination in feet, legs, and hands and fingers and other disorders. I don't like to add them up to be honest. Seems like too big a mountain to climb. But, God is Bigger. I have amazing Specialists and one in particular that helps with keeping my skull bone in place. I am not a good candidate for brain surgery and spinal fusion, so we are grateful that God Guided us to the Specialist to perform "non invasive brain surgery." The trip is long and difficult as my legs do not have feeling except for pain and do not work anymore. I still believe they will Heal. We are in the process of trying to build a conversion medical van to transport me as I can not sit in the car and use the restroom in the car anymore. It used to be a bed pan, but my legs and hips do not allow for that anymore. My joints, cartilage and ligaments are depleting due to EDS(connective tissue disorders) and malnutrition from mast cell. We are still trying very hard to build this part of my body back up. Praising God I get to try. There are alot more medical tests that need to be run and my immune system still needs to be protected. And I am grateful to all of my Dr.s that are compassionate and take care to keep me safe. And to everyone God Has Placed in our lives that have helped us and continue to help us so much.

I had to go for an MRI in February 2024 and the technician was not so kind and did not give me a pillow and wouldn't let my mom come back to help me. Dorian was home with our little one. I was and still am having to wear my half mask respirator and in wheel chair and can not move my legs as well. The staff at the hospital was informed of my Craniocervical instability and they did not give me a pillow...nothing was under my head. On top of everything, the machine was broken. My head was violently slammed off of the table at a rapid speed for over 4 minutes and I sustained a concussion and traumatic brain injury(TBI). I am now dealing with Post Concussion Syndrome, TBI and Partial Empty Sella Syndrome. So that effects all the hormones even more than before. Due to the mast cell it is harder to get anything in my body to help heal the brain. The bone we were trying so hard to heal in my skull to my C2 to keep my cerebral spinal fluid flowing and blood flowing was ripped out of it's place and it has been hard trying to rebuild that back up, even a little. The pain is different and sickening in a way I can not describe, and I am still trying to work my way through the trauma and short term memory loss, and having the feeling of being so helpless and the asking why did this have to happen? We are seeing anotjer specialist for this and there are some recommended therapies, but at this time we can not afford them. Some modalities include at home hyperbaric oxygen treatments, possible stem cell regeneration and other therapies to help the ligaments that were torn repair and the cartilage and bones. There are many other therapies needed for everything else that we were already going through with the mast cell and babesia and connective tissue. But, we have had to delay treatments as my body was set back so much from this incident and we do not have the funds. We know God's Timing is Perfect. So I Pray to Trust in Him.

The truth is, everything is harder. I am so so grateful to God my heart beats, but she is a bit broken. My soul is steadfast I Pray, but God Knows she is weary. I am worried for my little family. The medical bills have been piling up and their days are dedicated to taking care of me. I am Blessed to have such a supportive husband who does my IV's and is my medic. My Marine, my loyal husband, my medic, my love. I am Blessed to be with my little girl and tell her I love her. My whole reason why. My love of my life. I love her more than anything in this whole wide world. And I Pray to always keep trying and to be a good mama and watch her grow. I ask this in Jesus Name. Amen.

I wish I could move my neck more and more and kiss her on her cheek and her forehead. I wish I could hold her hand outside and put our toes on the Earth and breathe in God's Beautiful Life like we did last year if even for a few minutes. I hold these moments and ask God to Hide them deep in my being, right in my soul where I will never ever forget. Every single moment. My wishes are always Prayers. I Pray to be able to get down on my knees and Pray to my Heavenly Father once again. Right now I am not able due to my legs. I still bow my head as I am able, and I thank Him I get to. I Pray to Cling to God. I Pray He Comforts and Protects my little family. I Pray He Carries us always. And, I Pray to always thank Him for this life and I know in my heart and my soul, down to my bones that this life and these breaths He Gives me and my little family are Beautiful. I Pray to Pray for His Will and to really mean it. Lord, You Know my heart. Please keep them Safe. In Jesus Name. Amen.

I guess this is an update. I am probably forgetting a bit, but I Pray you get a small glimpse into what has been going on. I am asking for Prayers and help, if God Puts that on your heart. I am trying to Pray and Seek First the Kingdom of Heaven. I don't know how well I am doing with that. I do know God is Real. Jesus is our Lord and Savior and I have felt Him so Close. I Pray to feel Him Close Always. He is Always there. I Pray my little family feels Him Surrounding us. Lord You are our Refuge. We love You God. We love You Jesus. We love You Holy Spirit. All Glory to You Father.

The van is not done yet, but some of the same wonderful and kind people that helped with the Safe Space are helping with the van. I Pray God Blesses them so abundantly. The van will allow for us to be able to go to the specialists and have my IV in and my body to rest and be able to use the restroom and our little one be with us. I am so grateful to God I am sitting up a little and able to write this, as hard as it has been. Dorian and our sweet girl have been helping me spell check. I have not read this in it's entirety to her and I asked her to not read it for now. I Pray God Shields her. I just Pray she always knows mama is going to be alright and that God is Holding us. And, by the Grace of God I will never stop trying.

Please forgive me for typos and if I am not writing like I used to be able to. The TBI did a number on me. Nothing is too big for God. I need to remember this. I will try to give information and pictures, but also want to keep my little one's privacy.

To be honest I don't take many photos of my situation anymore. I like to take them of my little family. For the ones I do post please forgive me for the no hair and the fighter pilot look, but with mast cell and immune issues and head and neck we have to keep my body protected.

If you read all of this, thank you. Truly. And, please do not feel obligated to share or donate. If you Pray, please Pray if you feel led to. The Prayers mean more than I can ever say. We really, really Pray everyone is doing so well and healthy and happy. If you need Prayers please reach out and I will Pray. God Bless you and Keep you.

Love,

Leah

Psalm 46:5

God is within her

She will not fall.

God Will Help her at the break of day.

Psalm 23

The Lord is my shepherd; I shall not want.

He maketh me to lie down in green pastures: he leadeth me beside the still waters.

He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake.

Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.

Thou preparest a table before me in the presence of mine enemies: thou anointest my head with oil; my cup runneth over.

Surely goodness and mercy shall follow me all the days of my life: and I will dwell in the house of the Lord for ever.

I know by Your Still Waters we are Safe.

Before 2015:

My sweet sweet girl

Going on swing sets and play ground every day.

So thankful for these moments. Praise God.

After 2015:

Thanksgiving in the infusion center. But, we were all together. Praise God.

Boston Hospitals. Praise God for my little one.

In and out of the hospital alot between 2017 and 2020. Here are some of the pictures.

2020-February 2024

I got to hold her hand outside for even just a minute. Praise God.

After February 2024

Never Give Up is a bracelet she made me. I cherish this.

This is basically every day. Things have been very hard. But, God is Bigger.

Praising You Father. Thank You that I get to hold her hand and tell her I love her.

To those that know us...we really struggled with asking for help. But, at this point we feel we are backed into a corner. Her biggest fear is leaving our little girl. We appreciate any help. -Dorian

Leah says,"God is Bigger."

We are thankful.